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Seeing red spots (on Revlimid, dexamethasone & Eliquis)

by Wordy Diva on Tue Oct 10, 2017 8:02 pm

My husband (age 76) was diagnosed with multiple myeloma in March 2017. He laid down Sunday afternoon and while he was lying flat in bed, he looked up at the ceiling and commented that he saw "millions of red dots" on the (white) ceiling. No flashes; no darkness; just regular floaters and the million tiny red dots.

The spots gradually faded after about 15 minutes. He saw the spots with both eyes. No head­ache. No other symptoms. No recurrence (it has been 48 hours+). Oncologist says she has no idea what it is, but it is not "cancer-related." His multiple myeloma numbers are fairly stable. Ideas as to what on earth this is?

He has been taking Revlimid and dexamethasone in 28 day cycles since treatment began. He also takes Eliquis (apixaban) blood thinner for atrial fibrillation. I suspect that it is caused by his drugs. Here is an overview of his week leading up to the dots...

  • Sunday before: No Revlimid or dex due to day 21. No Eliquis due to preparation for hernia surgery.
  • Monday before: No Revlimid or dex; no Eliquis.
  • Tuesday before: Hernia surgery. General anesthesia. Outpatient. No complications. No Revlimid or dex. No Eliquis.
  • Wednesday before: No Revlimid or dex. No Eliquis.
  • Thursday before: No Revlimid or dex. Yes Eliquis..
  • Friday before: No Revlimid or dex. Yes Eliquis.
  • Saturday before: No Revlimid or dex. Yes Eliquis.
  • Sunday of episode: Yes Revlimid and dex. Yes Eliquis.
Thanks for any ideas as to what to pursue.

Wordy Diva
Name: Terry O.
Who do you know with myeloma?: husband
When were you/they diagnosed?: Jan. 2017 MGUS; Mar. 2017 multiple myeloma
Age at diagnosis: 75

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