> After 1 cycle my mspike is up higher to 2.3 and IGA up higher to 2700. This
> confused me. I eat very well, supplement, exercise. Doing some research I
> find Velcade has been proven ineffective if taken with Vitamin C. Well, I
> have been drinking Orange juice, grapefruit juice, and eating lots of
> fruits and veggies with Vitamin C. But even worse, I take 6 Grams of VitC
> per day. I was never told by either oncologist to not take VitC with
> Velcade.
>
> So now I wasted a month on 1 1/2 cycles with no results
This is a struggle I have. . . I have recently started treatment for multiple myeloma with the oncologist I've seen at our current location for 5 years. Up till now it was just the "watch and wait" blood tests. Since my exposure to multiple myeloma has been since 2002, I have spent time over the years reading and learning. However I slowed that down considerably over the last five years because it tended to make me worry about something I didn't need to worry about yet.
Now that I have started treatment, there is little to no counseling on side effects from my oncologist office. When I mention what I have learned on the internet. . . the frowning begins, as if the internet is not a good source for information. . . I do get a second opinion at a nearby Cancer Center.
I know the practices are large and it is difficult to give individualized attention. . . however your experience emphasizes the need to take charge of your own decisions through education from the Myeloma Beacon, IMF, MMRF, etc.
