[Mark11]

Re: Turkey tail mushroom & multiple myeloma

by Mark11 on Tue Jan 19, 2016 11:22 am

Hi Robert,

I use Lactobacillus GG. I was using 15 billion daily after transplant. I use 10 billion daily currently. Lactobacillus seems to show up in most of the papers I have seen. If interested here is a link to a research paper.

"Several studies have shown that gut microbial dysbiosis may have a link with complications after HSCT, including GVHD. In mouse models and patients with GVHD after BMT, Jenq et al. [69] observed a loss of microbial diversity and Clostridiales and expansion of Lactobacillales in intestinal microbiota. Eliminating Lactobacillales from the gut flora in mice before BMT could cause GVHD. When reintroducing a predominant species of Lactobacillus, GVHD was alleviated. After HSCT, a relative shift toward Enterococci in intestinal microbial communities was also found. Specifically, the shift was prominent in patients who subsequently developed or suffered from active gastrointestinal GVHD [66]. In another study, mice with GVHD lost microbial diversity and overwhelmingly expanded otherwise rare bacteria Escherichia coli. There was a close correlation between alterations in the intestinal microbiota and GVHD severity [70]."

http://www.translational-medicine.com/content/pdf/s12967-015-0640-8.pdf

Mark

[Pjorg45]

Re: Turkey tail mushroom & multiple myeloma

by Pjorg45 on Wed Feb 14, 2018 11:46 am

I have been taking turkey tail supplements with Darzalex. I was getting Darzelex for 16 weeks and it wasn't working with Revlimid. I started Pomalyst and I got pneumonia. At the suggestion of my acupuncturist I started turkey tail, about 1 to 1.5 gram per day in three increments, morning, afternoon, and night. My tumor burden as measured with NGS minimal residual disease (MRD) testing went from 4000 to 111. It has subsequently gone to 24 after five months. I am hoping for MRD zero next test in march.

Other things to know. I am on Darzalex every four weeks and as part of that regimen I take dexamethasone every week. We take dex because it has a way of amplifying the effect of multiple myeloma drugs. I believe that it also amplified the effect of turkey tail, so during the dex time I take the full 1.5 grams a day for four days and then I reduce the turkey tail to 0.5 grams per day. It does have some side effect,s so be careful not to take too much.

I also get Zometa every two months and I also take clarithromycin every day. I also take super bio curcumin daily. Two in the morning and two in the evening.

I do not have a way of knowing for sure if these other three treatments are having any effect, but if there is any hint that there is an anti-multiple myeloma effect, I take it. My oncologists are OK with my regimens.

I am also careful with my diet. Minimum sugar and lots of protein and lots of various vegetables. Every day.

So who knows, but for now I am happy and doing well.

[Arizonan]

Re: Turkey tail mushroom & multiple myeloma

by Arizonan on Wed Feb 14, 2018 9:06 pm

So glad it is working!

You’re regimen is unique. You are probably the only person in the world on it! Your creativity is paying off.

Good luck,

David