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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Treatment for relapse after VTD & stem cell transplant?

by tpt on Thu May 31, 2018 11:52 am

Thanks Nancy. Did you have any maintenance after then nine months?

Tpt

tpt

Re: Treatment for relapse after VTD & stem cell transplant?

by Nancy Shamanna on Thu May 31, 2018 3:12 pm

Hello again TPT,

Actually, after nine months, my counts came down to the levels I stated, but I still continued with the strong Revlimid and dexamethasone combination until September 2016! At that point I abruptly quit the regimen because I had to take treatment for another cancer. I have not required myeloma treatment since then, but am carefully monitored by blood work.

Also, previous to my relapse, at the five year marker of my myeloma journey, I had enjoyed 3 1/2 years away from treatment. But prior to that I had one year of lower-dose Revlimid after a stem cell transplant and induction therapy with Velcade and dexamethasone. So in nine years I have been on treatments for about half of the time.

Hope that helps!

Nancy Shamanna
Name: Nancy Shamanna
Who do you know with myeloma?: Self and others too
When were you/they diagnosed?: July 2009

Re: Treatment for relapse after VTD & stem cell transplant?

by tpt on Fri Jun 01, 2018 10:18 pm

Hi Nancy,

I'm sorry to learn about your second hurdle.

Thank you for sharing your experience. It helps me a lot. Regards,

Tpt

tpt

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