[Joy]

Re: A few transplant process / timing questions

by Joy on Tue Dec 03, 2013 10:30 am

I was told about that 90% after the fact, when my numbers were at 5% after treatment. I still would like to see the report for myself, as it seems hard to believe. Myeloma is a mighty strange disease.
Nancy,
I like the analogies that you used to describe how the drugs work. Very helpful.
Justine,
It sounds like you are being well cared for. Many positive thoughts to you. It is great that we can share experiences even though we are physically so far apart.

[darnold]

Re: A few transplant process / timing questions

by darnold on Sat Dec 07, 2013 2:18 pm

Hi Justine. I hope you are starting to feel better now.

I didn't get sick from the first round of chemo, but I had a similar experience to yours after the melphalan round. After a couple of days, I couldn't keep down any of the meds or food or liquid, including the Zofran. I ended up in in-patient care for about a week until my fever went away, my white counts came back up, and my digestive system healed.

I was borderline anemic months before my diagnosis, and I still am borderline. I had a transfusion while in the hospital, and one after I came home. I haven't needed one in nearly four years, though. I was on Revlimid for about two and a half years as my maintenance drug, and I did not handle it well. "Not well" included fluctuating red and white blood counts, which is not unusual with Revlimid. I've been off of all meds since this past January, and my new "normal" includes borderline anemia. It's just part of our journey.

I'm looking forward to hearing good news from you soon!