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Re: Diana's CAR T-cell therapy journey
Thank you for posting on Diana's behalf. I have followed her story from the beginning and just love her wit, writing style, and positive attitude. She has help me a lot. I am glad you are able to be with her.
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WholeNotherWorld - Who do you know with myeloma?: my husband
- When were you/they diagnosed?: Dec. 2016
- Age at diagnosis: 67
Re: Diana's CAR T-cell therapy journey
Your mom will be in my daily prayers. So unselfish and always upbeat.
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Ron Harvot - Name: Ron Harvot
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: Feb 2009
- Age at diagnosis: 56
Re: Diana's CAR T-cell therapy journey
HI all, Diana's daughter here again.
I'm sorry its been some time. Just a small note that Mom passed away on July 18th, quite peacefully, before she even managed to go home. We had done all the preparations and she was just hours from being transported home where we thought she had a few more weeks, but Mom had different plans.
What I can tell you is that she was very concerned that the time she spent will eventually be of help to others dealing with this awful disease. One of the last things she asked of her medical team was, "But did I help you?"
It's been a really weird situation with Covid-19 and lockdowns, and we could not even have a proper funeral for her. Because of where we live (Los Angeles County), there were severe restrictions about the funeral home, cemetery, etc. Here they tell us a woman who raised five children and has a large family could only have three people at a graveside service? That's just not okay. So, for now, we honored Mom's wishes. She was cremated and we will be holding a service at a later date when it's safer for everyone.
I wish I had better news, but she definitely pushed hard though that trial, and things were looking really good. It's my understanding from the team that it was working, but the CAR T-cells were ultimately killed off because of the infections, which is something we were well aware was possible. I'm sure the medical team have better answers about the technicalities.
I'm sorry its been some time. Just a small note that Mom passed away on July 18th, quite peacefully, before she even managed to go home. We had done all the preparations and she was just hours from being transported home where we thought she had a few more weeks, but Mom had different plans.
What I can tell you is that she was very concerned that the time she spent will eventually be of help to others dealing with this awful disease. One of the last things she asked of her medical team was, "But did I help you?"
It's been a really weird situation with Covid-19 and lockdowns, and we could not even have a proper funeral for her. Because of where we live (Los Angeles County), there were severe restrictions about the funeral home, cemetery, etc. Here they tell us a woman who raised five children and has a large family could only have three people at a graveside service? That's just not okay. So, for now, we honored Mom's wishes. She was cremated and we will be holding a service at a later date when it's safer for everyone.
I wish I had better news, but she definitely pushed hard though that trial, and things were looking really good. It's my understanding from the team that it was working, but the CAR T-cells were ultimately killed off because of the infections, which is something we were well aware was possible. I'm sure the medical team have better answers about the technicalities.
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dianaiad - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Officially...March 2013
- Age at diagnosis: 63
Re: Diana's CAR T-cell therapy journey
I am so sorry to hear about the loss of your dear mother, and I hope that all of you can remember all the nice times you had together. I think that Diana did help others here by sharing her story in such a wise way. I had followed her story right from the beginning of her posts and will miss her presence on the Beacon.
Best wishes to all of you,
Nancy
Best wishes to all of you,
Nancy
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Diana's CAR T-cell therapy journey
Hello Diana's family and friends,
I am so sorry for your loss. If Diana had asked those who have followed her myeloma journey here here if she helped, I'm sure the answer would be a resounding "Yes!". Ever since I was diagnosed, CAR T-cell therapy has been a beacon for me. It still is, but it is now, while Covid-19 is in our midst, a more balanced desire.
May whatever higher power you look to help you through this time,
Janice
I am so sorry for your loss. If Diana had asked those who have followed her myeloma journey here here if she helped, I'm sure the answer would be a resounding "Yes!". Ever since I was diagnosed, CAR T-cell therapy has been a beacon for me. It still is, but it is now, while Covid-19 is in our midst, a more balanced desire.
May whatever higher power you look to help you through this time,
Janice
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janimcdo - Name: Janice McDonald
- Who do you know with myeloma?: me,
- When were you/they diagnosed?: Yesterday, April 2018
- Age at diagnosis: 69
Re: Diana's CAR T-cell therapy journey
I am so sorry for your loss. I will miss your mother.
Yes, she did help, and I am sure her sense of humour also helped a lot of us. Thank you Diana!
Yes, she did help, and I am sure her sense of humour also helped a lot of us. Thank you Diana!
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jane84 - Name: jane84
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 11,2012
- Age at diagnosis: 44
Re: Diana's CAR T-cell therapy journey
I was so excited to see a thread by Diana when I came to the forum today and now feel devastated over her loss. I was diagnosed around the same time as Diana and this made me feel we had a connection. My condolences to her family.
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kjpoppit - Name: Kim Nelson
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Sept. 19th, 2013
- Age at diagnosis: 47
Re: Diana's CAR T-cell therapy journey
Thank you, Diana's daughter, for sharing your update with all of us, as sad as the news may be. I am very grateful for Diana's many contributions to the forum. I will miss the experiences and humor she shared with all of us here. Please accept my condolences; I am very sorry for your loss.
Re: Diana's CAR T-cell therapy journey
Thank you for posting. I always enjoyed reading your mother's posts; she had a unique and cheerful writing style that was very uplifting. I know you'll all miss her!
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vmeyer - Name: vmeyer
- Who do you know with myeloma?: my husband
- When were you/they diagnosed?: March 2016
- Age at diagnosis: 65
Re: Diana's CAR T-cell therapy journey
Thank you for sharing the conclusion to this part of Diana’s story. She had a real ability to communicate through her writing. As a quilter, I always felt a special connection. I’m so sorry for your loss, especially during these challenging times.
Linda
Linda
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LindaM - Name: Linda
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: August 2016
- Age at diagnosis: 59
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