Update:
Had all my tests yesterday, and spoke with the doctor, who says my light chains still aren't up high enough to use as a "measure." However, that thing on the back of my head has enough multiple myeloma cells, and with enough CS1 sensitivity, that they are going to use it.
The doctor said that it's too bad that the COVID-19 is messing with everybody. You would not believe the stringent testing going on there. They wouldn't allow my daughter to be with me at all while I was getting tested on campus. She spent the day looking for a restroom elsewhere.
However, my meyeloma is not, said the doctor, paying attention to the calendar or the rules regarding quarantine, and I could be in real trouble by the time they "open the country." So..I'm getting admitted tomorrow, Friday, March 27th. I'll have treatment to knock down my immune response on Saturday, Sunday, and Monday, with the CAR T-cell infusion on Thursday, April 2, one week from today.
No visitors allowed at any time. I'm going to be so bored. Thank you, electronics!
See you all soon.
Forums
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dianaiad - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Officially...March 2013
- Age at diagnosis: 63
Re: Diana's CAR T-cell therapy journey
Best of luck to you, Diana! I am so happy that you are able to proceed with this procedure during these challenging times. Looking forward to hearing from you soon.
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Diana's CAR T-cell therapy journey
Good luck, Diana. I am wishing you all the best with the CAR T-cell treatment. Take good care of yourself!
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Diana's CAR T-cell therapy journey
All the best, Diana.
Many of us, like myself, may be candidates for this therapy, sooner or later. Your posts will help us all.
Many of us, like myself, may be candidates for this therapy, sooner or later. Your posts will help us all.
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K_Shash - Name: K_Shash
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: November 2014
- Age at diagnosis: 67
Re: Diana's CAR T-cell therapy journey
Thank you so much for keeping us informed.
Wish you all the best!
Wish you all the best!
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jane84 - Name: jane84
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 11,2012
- Age at diagnosis: 44
Re: Diana's CAR T-cell therapy journey
Mini-Update:
Here we go. The bed is ready for me at the cancer center, and I'm on my way. The chemotherapy infusions prior to the T-cell infusion start tomorrow.
Thanks for all the good wishes, everybody!
Here we go. The bed is ready for me at the cancer center, and I'm on my way. The chemotherapy infusions prior to the T-cell infusion start tomorrow.
Thanks for all the good wishes, everybody!
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dianaiad - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Officially...March 2013
- Age at diagnosis: 63
Re: Diana's CAR T-cell therapy journey
Go get 'em, Diana!
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Mike F - Name: Mike F
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: May 18, 2012
- Age at diagnosis: 53
Re: Diana's CAR T-cell therapy journey
Update:
It's day three of the chemotherapy infusions. Everybody is being very cautious about COVID-19, so I'm allowed no visitors. Even my doctor does phone visits.
It's day three of the chemotherapy infusions. Everybody is being very cautious about COVID-19, so I'm allowed no visitors. Even my doctor does phone visits.
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dianaiad - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Officially...March 2013
- Age at diagnosis: 63
Re: Diana's CAR T-cell therapy journey
Please know you have been in my thoughts and prayers as you go thru this. I am praying this will be successful and you will be back to your family soon.
Lots of prayers and love sent your way!
Rhonda
Lots of prayers and love sent your way!
Rhonda
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Rhonda - Who do you know with myeloma?: myself
- When were you/they diagnosed?: September 2014
- Age at diagnosis: 54
Re: Diana's CAR T-cell therapy journey
We wish you good luck with the CAR T-cell therapy. We have watched your journey closely, and love your posts.
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WholeNotherWorld - Who do you know with myeloma?: my husband
- When were you/they diagnosed?: Dec. 2016
- Age at diagnosis: 67
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