Interesting. I have been hypothyroid and treated as such for over 20 years. I am now on 125 mcg Synthroid.
I just wish something would fix my extremely low energy levels.
Forums
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Toni - Name: Toni
- Who do you know with myeloma?: self - MGUS
- When were you/they diagnosed?: April 2014
- Age at diagnosis: 51
Re: Low thyroid activity (TSH levels) & multiple myeloma
Dianem,
You didn't mention if you were under treatment for multiple myeloma or just in the MGUS stage. I also am on an 88 dose of thyroid medicine after thyroid cancer in 2008. I was diagnosed with multiple myeloma in 2013 but have so few symptoms that I just do alternative drugs at this point. I am also considering asking for a lower dose when I return to my endocrinologist in October.
Best of luck to you.
You didn't mention if you were under treatment for multiple myeloma or just in the MGUS stage. I also am on an 88 dose of thyroid medicine after thyroid cancer in 2008. I was diagnosed with multiple myeloma in 2013 but have so few symptoms that I just do alternative drugs at this point. I am also considering asking for a lower dose when I return to my endocrinologist in October.
Best of luck to you.
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barbara1200 - Name: barb
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 2013
- Age at diagnosis: 75
Re: Low thyroid activity (TSH levels) & multiple myeloma
Hi Barbara,
I've had MGUS for almost three years and treated for low thyroid for about 20 years. I started lowering the Synthyroid dose over a year ago and now take 88 mcgs. I see an oncologist annually for monitoring MGUS. I have zero symptoms from MGUS and didn't notice any 'thyroid' change since lowering Synthyroid. My PCP feels I was over medicated.
Good luck with lowering the dose - Diane
I've had MGUS for almost three years and treated for low thyroid for about 20 years. I started lowering the Synthyroid dose over a year ago and now take 88 mcgs. I see an oncologist annually for monitoring MGUS. I have zero symptoms from MGUS and didn't notice any 'thyroid' change since lowering Synthyroid. My PCP feels I was over medicated.
Good luck with lowering the dose - Diane
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Dianem
Re: Low thyroid activity (TSH levels) & multiple myeloma
I saw a doctor, trying to control my MGUS (now asymptomatic myeloma), which made me do sophisticated analyses.
My iodine level was super low, and the doctor gave me a supplement iodine (I-biane, Laminaria digitata (edible seaweed)). He also gave me vitamins B12, selenium, zinc, magnesium, etc.
It's been a month and a half I take it all, but I find myself more tired, and now I have a bad back.
Is it certain that iodine can advance disease?
Here in Paris (France), the hospital sees me only every six months, a consultation of 20 minutes, and does not give me any treatment.
I'm afraid I made a mistake in taking these supplements.
My iodine level was super low, and the doctor gave me a supplement iodine (I-biane, Laminaria digitata (edible seaweed)). He also gave me vitamins B12, selenium, zinc, magnesium, etc.
It's been a month and a half I take it all, but I find myself more tired, and now I have a bad back.
Is it certain that iodine can advance disease?
Here in Paris (France), the hospital sees me only every six months, a consultation of 20 minutes, and does not give me any treatment.
I'm afraid I made a mistake in taking these supplements.
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Jacqueline - Name: Jacqueline
- When were you/they diagnosed?: november 2010
- Age at diagnosis: 53
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