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Thanks!

by royjulius on Wed Jun 19, 2013 8:25 am

I would like to thank everyone who posted on my threads. I was needing help convincing my Alma to try a treatment, such as Pomalyst, before it was too late. I sat her down to read the posts you guys made, and that convinced her to give Pom a try. You all have potentially saved her life and I thank you. She will get her first round today. I know this is not a cure, but it may help her survive long enough to try Duratumumab, which seems like the closest thing to a cure that I've read about. Thank you thank you thank you. :D

royjulius
Who do you know with myeloma?: My girlfriend of 10 years, Alma
When were you/they diagnosed?: About 5 years ago
Age at diagnosis: 57
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Re: Thanks!

by royjulius on Thu Jun 27, 2013 11:15 am

Well, tomorrow we meet with her oncologist to see if he thinks this is the right path for us to take....

royjulius
Who do you know with myeloma?: My girlfriend of 10 years, Alma
When were you/they diagnosed?: About 5 years ago
Age at diagnosis: 57
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Re: Thanks!

by royjulius on Mon Jul 08, 2013 11:33 am

Well, Alma turned for the worst before she got to try the Pom. She left me peacefully and comfortably last Wednesday.

royjulius
Who do you know with myeloma?: My girlfriend of 10 years, Alma
When were you/they diagnosed?: About 5 years ago
Age at diagnosis: 57
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Re: Thanks!

by Denise H on Mon Jul 08, 2013 12:13 pm

Roy, this is such a sad thing to hear. God bless your beloved Alma and comfort you in your loss.

Denise H
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Re: Thanks!

by Joy on Mon Jul 08, 2013 12:34 pm

I'm so sorry to hear of your loss of Alma. I hope you find comfort in all of the good memories.

Joy
Name: Joy
Who do you know with myeloma?: myself
When were you/they diagnosed?: May 2013
Age at diagnosis: 52
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Re: Thanks!

by dnalex on Mon Jul 08, 2013 1:25 pm

I'm so very sorry, Roy.

dnalex
Name: Alex N.
Who do you know with myeloma?: mother
When were you/they diagnosed?: 2007
Age at diagnosis: 56
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Re: Thanks!

by royjulius on Mon Jul 08, 2013 4:20 pm

Thanks. When her Dad passed away from this in the 70s, his passing was awful I have heard. It wasn't so for my Alma. New advances in everything including comfort care really made it better for her. She held my hand and winked at me a few hrs before she departed. Thanks all of you on here for everything. I will still check in occasionally to see if there are any questions I can answer concerning what I've just dealt with. Roy

royjulius
Who do you know with myeloma?: My girlfriend of 10 years, Alma
When were you/they diagnosed?: About 5 years ago
Age at diagnosis: 57
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Re: Thanks!

by TerryH on Mon Jul 08, 2013 7:57 pm

I am so sorry to hear this news, Roy, but I am comforted to hear that Alma did not experience too much or discomfort in her final hours.

I appreciate your letting us know what happened. I know this can't be an easy time for you, so it is so generous of you to update us.

We are all here and you are welcome to come back and let us know how you are doing and seek whatever support you need. We will do what we can.

TerryH
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