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Thalidomide

by j's caretaker on Sun Feb 13, 2011 4:49 pm

My husband is now on Thalidomide and has been since Dec of 2009. What is the safe length of time one can be on this drug?

j's caretaker
Name: klm
Who do you know with myeloma?: husband
When were you/they diagnosed?: 2009
Age at diagnosis: 52
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Re: Thalidomide

by Nanette on Thu Feb 17, 2011 6:08 pm

Hi Kim-

My husband has been on Thalomid for almost 3 years now. Currently as maintenance, as he has been in complete remission 19 months post transplant. We think that he'll be off of it this July (2 years post transplant).

He's had no problems other than finger cramps.

I'll be curious to hear what our resident experts have to say about this! Best of luck, kiddo.

Nanette
Name: Nanette "Deaux"
Who do you know with myeloma?: My dear husband, Dominic
When were you/they diagnosed?: Spring of 2008
Age at diagnosis: 62
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Re: Thalidomide

by Anonymous on Wed Feb 23, 2011 8:31 pm

:D I took Thalomid for two years and it drove my numbers done wonderfully. But I had to stop due to Neuropathy. If you don't have that you can take it a long time. Geraldine Ferraro, the politician has been on it for 10 years last I knew. You can visit her website and learn of her experience.

Hugh

Anonymous
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