I met with a bone marrow doctor yesterday on a consult setup by my oncologist, and he wants me to move directly to a stem cell transplant instead of doing any cycles of treatments, as my numbers have been pretty steady for the last 4 years when they first found the marker, just recently starting to increase, but still pretty low I'm told.
A kidney biopsy confirmed that I have light chain deposition disease, not multiple myeloma, as my bone marrow biopsy was only at 6-8%. My kidney specialist says my kidneys are still working at 100% with no real damage yet. I was told I could wait until next spring for the stem cell transplant, so that is the plan for now, but I'll know for sure by the end of the week.
Personally I'm not good with change. I've been with my wife for 20 years and at the same job for 13 years, even though both have been very trying at times
. I don't like change, as you can see, and this to me is a life changer, so this is very hard for me to get a grasp on. I do get comfort though from people like yourselves who are living with either light chain deposition disease or multiple myeloma and sharing your stories. I will continue to visit the Beacon and ask questions and hopefully get inspiration and encouragement moving forward.
