[Jar1953]

Re: Are symptoms and test results consistent with MGUS?

by Jar1953 on Wed Dec 09, 2015 5:45 pm

Just a bit of my history. Hopefully it will ease your stress.

In my 40's, I had a lot of issues and they were looking heavy with most all tests. In the process they came across a IgM spike of 0.3g/dl.

I had to have an oncology consult. That doctor made me get a bone marrow test. I then had repeat blood work every 3 months for a year and then every 6 months for a year and now yearly for life.

My doctor left and before he left he told me that I needed to be on top of that blood work for life. Not to get laxed with it. He said that multiple myeloma generally showed up around 15 years post fine if it did show up at all. 2% of the population walk around with it and never know it. It is a nuisance find for most people. But once you find it, you have to monitor it.

So here I am in my 60's and I just had my yearly blood work. For the first time I have elevated BUN, BUN/Creatinine and globulins. I am waiting for the electrophoresis to return. My IgM has been unchanged for that 20 some years accept for last year. It was 0.4g/dl.

I know what you mean, I am a little worried about it, but we are luckier then most. The myeloma patient who does not know and did not monitor find it later. I hope you are past this stress and now know that it is for sure a MGUS.

Good luck

[christophe]

Re: Are symptoms and test results consistent with MGUS?

by christophe on Wed Dec 16, 2015 8:14 pm

Doubledj1,

I have MGUS (IgA kappa) and I do have a lot of symptoms, but the most persistent is the muscle twitching and musculoskeletal pain like you described. It's been a year now and it's gradually becoming worse.

Neurologists sent me to hematologists and hematologists asked me to follow up with neurologists - no help.

Let me know if you find some ways to relieve your pain, I'll do the same.

Christophe