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Re: Sweating buckets while taking Revlimid and dex
I have no solutions; but I can commiserate. It does not matter what time a day I take the dex, although I do take it the second I wake up. I didn't know the Revlimid might cause sweating. I am taking my Velcade every other week now, so I get a week off the dex. I absolutely despise the side effects of corticosteroids.
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Lin516 - Name: Lin
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: 04/09/2013
- Age at diagnosis: 57
Re: Sweating buckets while taking Revlimid and dex
My husband was diagnosed with multiple myeloma on April 1, 2013. He is on Revlimid 10 mg (21 days and 7 days off ) and dexamethasone 40 mg (Friday nights). Also he is celiac (he cannot eat gluten and he is on gluten free diet) - diagnosed in November, 2010. I keep a food journal for him, also a separate folder for myeloma - all blood test, all doctor visits, all medications and all side effects.
Lately on Fridays (after taking dex) he was sweating at night and he got arrhythmia (irregular heartbeat). On March 22, 2014 we got to emergency room, because his pulse was 137. How to stop all these night sweating?
We have a wonderful oncologist. He gave us his cell phone number and always answers all our questions. If you live in Maryland, we can recommend our wonderful doctor to you.
Lately on Fridays (after taking dex) he was sweating at night and he got arrhythmia (irregular heartbeat). On March 22, 2014 we got to emergency room, because his pulse was 137. How to stop all these night sweating?
We have a wonderful oncologist. He gave us his cell phone number and always answers all our questions. If you live in Maryland, we can recommend our wonderful doctor to you.
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hippo
Re: Sweating buckets while taking Revlimid and dex
I would like to add to this old discussion that I have been on Velcade and dex most of last year, then pomalidomide (Pomalyst, Imnovic) and dex from December 2013 to July 2014, and the sweating was unbelievable but worse once I got onto pomalidomide.
I am now on thalidomide and prednisolone and if I thought it was bad before, well I was wrong! I was taking dex on one day a week (40 mg) with the pomalidomide. Now I am taking 150 mg of thalidomide daily then prednisolone (75 mg) and melphalan (28mg) - both the pomalidomide and melphalan for 5 consecutive days of a 28 day cycle. I am warmer in the day time and any movement has me dripping with perspiration, but I feel the cold quite badly too. I have long suspected that my thermostat is broken!
You can probably gather from the constant chemo changes that I am really struggling with this relapse. It appears that over the last 18 years I have had just about every chemo that is available to me and do not meet the criteria for any clinical trials that are around at present.
Given that dex, and now prednisolone even more so, has me sweating profusely, I would have to conclude that steroids, and the way they interact with different chemo drugs, are the main culprits in this situation.
I should be having more than my regular 2 showers daily but unfortunately do not have the energy. I dread the summer. We are at the end of winter here in South Australia and just the last few days we have had temps of around 23 degrees centigrade [73 Fahrenheit] - a taste of what is to come. It has been most uncomfortable to say the least.
I am now on thalidomide and prednisolone and if I thought it was bad before, well I was wrong! I was taking dex on one day a week (40 mg) with the pomalidomide. Now I am taking 150 mg of thalidomide daily then prednisolone (75 mg) and melphalan (28mg) - both the pomalidomide and melphalan for 5 consecutive days of a 28 day cycle. I am warmer in the day time and any movement has me dripping with perspiration, but I feel the cold quite badly too. I have long suspected that my thermostat is broken!
You can probably gather from the constant chemo changes that I am really struggling with this relapse. It appears that over the last 18 years I have had just about every chemo that is available to me and do not meet the criteria for any clinical trials that are around at present.
Given that dex, and now prednisolone even more so, has me sweating profusely, I would have to conclude that steroids, and the way they interact with different chemo drugs, are the main culprits in this situation.
I should be having more than my regular 2 showers daily but unfortunately do not have the energy. I dread the summer. We are at the end of winter here in South Australia and just the last few days we have had temps of around 23 degrees centigrade [73 Fahrenheit] - a taste of what is to come. It has been most uncomfortable to say the least.
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SusanMary - Name: Susan Brown
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Feb 1996
- Age at diagnosis: 47
Re: Sweating buckets while taking Revlimid and dex
I got on the net to find out if anybody sweats like I do and I guess it must be the Revlimid. I am a self-employed contractor and I am sweating buckets all day long.
Thank you everybody for the information.
Thank you everybody for the information.
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scuddrunner
Re: Sweating buckets while taking Revlimid and dex
I take 10 mg Revlimid everyday and 40 mg dex once a week. I read the side effects for the Revlimid, not just sweating, but 'sweats a lot'. I take my meds in the morning, was not told any different, just same time everyday. Am like the rest of you with the excessive sweating. Everyone else around me doing the same work, dry headed. Me, I look like I stuck my head under the shower.
I will take the Claritin to see if that helps, and will report back.
My numbers were low, so I was able to stop the meds for about 5 months, did not have the excessive sweating. My numbers went up, so back on the meds.
I will take the Claritin to see if that helps, and will report back.
My numbers were low, so I was able to stop the meds for about 5 months, did not have the excessive sweating. My numbers went up, so back on the meds.
Re: Sweating buckets while taking Revlimid and dex
I am on 10 mg Revlimid only, no dex, and sweat, sweat, sweat. I live in the south of Florida so it's hot anyway but I sweat excessively. My doctor did not think it was the Revlimid but reading all these posts I truly believe it is. I will also try Claritin and report back in a few weeks.
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Slimshady
Re: Sweating buckets while taking Revlimid and dex
Hi,
My first post here, but I've been a reading for a while and am grateful you guys are here.
My oncologist yesterday suggested phytoestrogens, so I'm going to try that. I have no history of other female cancers (breast, ovarian), so it might just do the trick. I'm on 25 mg of Revlimid, and he's cut down the dex to 2 times weekly at 4 mg per dose. That's been a relief. My moon face is disappearing.
I was diagnosed May 2015. My mono protein was 13, M spike 7,400, and I still have my tumor but it's shrinking. Right now all my bad pain from healed fractures is gone. I still get all the side effects but after 1 1/2 years, I know that's all it is. Bone pain, cramping, major bruising. The sweating has been the most annoying. We decided against a transplant early on.
My first post here, but I've been a reading for a while and am grateful you guys are here.
My oncologist yesterday suggested phytoestrogens, so I'm going to try that. I have no history of other female cancers (breast, ovarian), so it might just do the trick. I'm on 25 mg of Revlimid, and he's cut down the dex to 2 times weekly at 4 mg per dose. That's been a relief. My moon face is disappearing.
I was diagnosed May 2015. My mono protein was 13, M spike 7,400, and I still have my tumor but it's shrinking. Right now all my bad pain from healed fractures is gone. I still get all the side effects but after 1 1/2 years, I know that's all it is. Bone pain, cramping, major bruising. The sweating has been the most annoying. We decided against a transplant early on.
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Mona L
Re: Sweating buckets while taking Revlimid and dex
I switched to bamboo sheets and pajamas for the sweating. For me this makes a big cooling difference!
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Sumac55
Re: Sweating buckets while taking Revlimid and dex
Hi,
My Husband was diagnosed April 2017. He does sweat a lot from the dexamethasone, but he splits his dose up to take twice a week, 20 mg on Sunday, 20 mg on Thursday. Not such a whack of symptoms.
Perhaps your doctor would allow that schedule for you too since you seem to be reacting so heavily.
My Husband was diagnosed April 2017. He does sweat a lot from the dexamethasone, but he splits his dose up to take twice a week, 20 mg on Sunday, 20 mg on Thursday. Not such a whack of symptoms.
Perhaps your doctor would allow that schedule for you too since you seem to be reacting so heavily.
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gorgesrwe2018 - Name: Gorgesrwe
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: April 2017
- Age at diagnosis: 63
Re: Sweating buckets while taking Revlimid and dex
Hi all.
I'm currently on 40 mg of dex once per week. I take it Wednesday nights as the evening dose seems to give me better sleep that night (it hasn't fully kicked in) and Thursday nights (as it's fading). I'm not currently on Revlimid, though we've made two tries with it, but the side effects of 25 mg on my blood counts (falling hemo, platelets, and whites) were too severe. At the moment I'm on every other week Darzalex, which I tolerate very well, along with the dex. I'm hoping that we'll add back the Revlimid in a smaller dose when my counts get back to where my oncologist is comfortable in resuming it.
Anyway, I've had significant night sweats recently, especially on those Wednesday nights where I take the dex. I went through 3 shirts last night. I've also had them that bad on other nights as well. A little research on night sweats does show that diet matters, especially spicy food and/or eating late dinners close to bed time. Interestingly, last night I had spicy food pretty late, so that might have been part of it. Sunday night's dinner was also pretty spicy, but not late, and I had a pretty good round of night sweats. So one suggestion here is that if you take dex at night, track your dinner habits and look for correlations.
One other thought. It's interesting that people crave carbs on dex. The dex and the Darzalex pre-med steroid shoot my glucose through the roof. I was already pre-diabetic, so this has ended me up on daily insulin to try to keep it under control. I love my carbs, but on Thursdays (today), I end up having to basically go keto to make sure the glucose isn't wildly high. Same with Monday dinners and Tuesday through lunch (Monday is Darzalex day). Weekends are for carbs!
I hope this is helpful. Tonight, I'm going to try a lighter blanket and see what happens. Between that and the earlier, milder dinner, I'm hoping to make it through the night without a shirt change.
I'm currently on 40 mg of dex once per week. I take it Wednesday nights as the evening dose seems to give me better sleep that night (it hasn't fully kicked in) and Thursday nights (as it's fading). I'm not currently on Revlimid, though we've made two tries with it, but the side effects of 25 mg on my blood counts (falling hemo, platelets, and whites) were too severe. At the moment I'm on every other week Darzalex, which I tolerate very well, along with the dex. I'm hoping that we'll add back the Revlimid in a smaller dose when my counts get back to where my oncologist is comfortable in resuming it.
Anyway, I've had significant night sweats recently, especially on those Wednesday nights where I take the dex. I went through 3 shirts last night. I've also had them that bad on other nights as well. A little research on night sweats does show that diet matters, especially spicy food and/or eating late dinners close to bed time. Interestingly, last night I had spicy food pretty late, so that might have been part of it. Sunday night's dinner was also pretty spicy, but not late, and I had a pretty good round of night sweats. So one suggestion here is that if you take dex at night, track your dinner habits and look for correlations.
One other thought. It's interesting that people crave carbs on dex. The dex and the Darzalex pre-med steroid shoot my glucose through the roof. I was already pre-diabetic, so this has ended me up on daily insulin to try to keep it under control. I love my carbs, but on Thursdays (today), I end up having to basically go keto to make sure the glucose isn't wildly high. Same with Monday dinners and Tuesday through lunch (Monday is Darzalex day). Weekends are for carbs!
I hope this is helpful. Tonight, I'm going to try a lighter blanket and see what happens. Between that and the earlier, milder dinner, I'm hoping to make it through the night without a shirt change.
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Steve Horwitz - Name: Steve Horwitz
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: November 2017
- Age at diagnosis: 53
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