I've heard that fresh fish is a no no. but what about certain sushi rolls?
I haven't had sushi since being diagnosed and quit drinking alcohol and am playing by their rules, and I feel like having sushi or even having a appetite is rare nowadays.
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Tombomb87 - Name: tommy
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 01/20/2017
- Age at diagnosis: 29
Re: Sushi and multiple myeloma
While I am not medically trained, I can provide my history with eating sushi. I was diagnosed in December of 2015 and I am 47. After I was diagnosed, I waited until my 3rd cycle of dex, Revlimid, and Velcade to have sushi. My labs were normal except my kappa free light chain level. I actually ate sushi multiple times from my 3rd cycle up to my stem cell transplant last May 10th (almost a year),
On the next to the last day before my stem cell transplant, I actually had a sushi feast from one of the well respective sushi places where in live in Boca Raton, Florida. After my stem cell transplant, I waited for nine months without having sushi (the wait was hard). Since January of this year, even though I have now been on Kyprolis, Revlimid, and dex, I have sushi usually once every other week at a very well respective and clean sushi restaurant.
I have not had any problems eating sushi. As mentioned, I am not medically trained, but I believe that the big item is where you live and the cleanliness of the sushi restaurant kitchen and other facilities. There are some sushi places I would never go into because I do not believe they are safe enough for an immunocompromised individual.
For me, the place I eat sushi is cleaner than a number of other places that most people visit. My advice is just my practice, and I will continue to eat sushi as long as my neutrophil, and white blood count levels are high enough.
On the next to the last day before my stem cell transplant, I actually had a sushi feast from one of the well respective sushi places where in live in Boca Raton, Florida. After my stem cell transplant, I waited for nine months without having sushi (the wait was hard). Since January of this year, even though I have now been on Kyprolis, Revlimid, and dex, I have sushi usually once every other week at a very well respective and clean sushi restaurant.
I have not had any problems eating sushi. As mentioned, I am not medically trained, but I believe that the big item is where you live and the cleanliness of the sushi restaurant kitchen and other facilities. There are some sushi places I would never go into because I do not believe they are safe enough for an immunocompromised individual.
For me, the place I eat sushi is cleaner than a number of other places that most people visit. My advice is just my practice, and I will continue to eat sushi as long as my neutrophil, and white blood count levels are high enough.
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Aclinkboca - Name: AC
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: Dec 2015
- Age at diagnosis: 46
Re: Sushi and multiple myeloma
I still don't eat sushi that has seafood in it, since I think it is raw. But I like to eat vegetarian sushi. I am no longer as immunocompromised now as I was a few years ago, but still am cautious. I do eats lots of cooked fish and seafood though!
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Sushi and multiple myeloma
When I was diagnosed and in hospital, my sister brought a sushi dinner to my room and we were eating it and the nurse told me you're not supposed to eat it when you are undergoing treatment. Oops! Who knew?
If you are not on treatment and have normalish counts, I don't see the problem. I eat sushi often. Where I live (Toronto, Canada), even though the fish is technically raw, there is a law it must be flash frozen before they can sell it; that is to kill a lot of pathogens that could spread in raw fish.
If you are not on treatment and have normalish counts, I don't see the problem. I eat sushi often. Where I live (Toronto, Canada), even though the fish is technically raw, there is a law it must be flash frozen before they can sell it; that is to kill a lot of pathogens that could spread in raw fish.
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lys2012 - Name: Alyssa
- When were you/they diagnosed?: 2010, Toronto, Canada
- Age at diagnosis: 32
Re: Sushi and multiple myeloma
Occasionally I break and have sushi with raw fish. There are things like that and raw oysters that I so miss, but don't dare eat them. It's not only the place where the food is prepared, but the waters that the fish lived in and the conditions on the boat/ship that caught them and kept them chilled. This is one area that I really am extra cautious about. The other one is eating meat that isn't cooked at least to medium.
I'm probably being over cautious, but since I already have GI problems from the drugs, I don't want to possibly add another layer of difficulty. I do have a drink periodically. Other than getting tipsy with one drink now, it hasn't been a problem for me.
Nancy in Phila
I'm probably being over cautious, but since I already have GI problems from the drugs, I don't want to possibly add another layer of difficulty. I do have a drink periodically. Other than getting tipsy with one drink now, it hasn't been a problem for me.
Nancy in Phila
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NStewart - Name: Nancy Stewart
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 3/08
- Age at diagnosis: 60
Re: Sushi and multiple myeloma
I agree with everyone who said cleanliness of the restaurant is so important because of cross contamination with the raw fish. I have only ordered from two restaurants since being diagnosed and have not had any issues. However, I only order rolls with tempura fried or boiled seafood inside or veggie rolls. Usually, there are items on the sushi menu with an asterisk, denoting if they are made with raw seafood or not.
I also started making my own at home, which is something you may want to try. It took me about three occasions to get the rolling down, but it's fun and you can be more creative with the ingredients. California and Philly rolls have been fine since they have no raw fish and are relatively easy to make.
I also started making my own at home, which is something you may want to try. It took me about three occasions to get the rolling down, but it's fun and you can be more creative with the ingredients. California and Philly rolls have been fine since they have no raw fish and are relatively easy to make.
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stefania888 - Name: Stephanie
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: July 2016
- Age at diagnosis: 30
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