My oncologist/hematologist sent a list of suggested supplements that may help prevent and/or treat peripheral neuropathy. The source was Journal of the National Comprehensive Cancer Network, and I found it here:
http://www.nccn.org/JNCCN/PDF/2010_Vol%208_Suppl_1_Multiple_Myeloma.pdf
It lists vitamin B complex (B6 50 mg not to exceed 100 mg), vitamin E, vitamin D, fish oils, magnesium, potassium (dose from physician or via diet), tonic water in PM, acetyl-carnitine, alpha-lipoic acid, and glutamine.
At a recent patient conference I attended, a UCSF myeloma specialist mentioned B6 50 mg, calcium, vitamin D, alpha-lipoic acid and acetyl-carnitine for the same purpose.
I'm curious what others take and what the results have been, though it's tough to assess cause/effect with this individually I suppose. What does your own multiple myeloma specialist recommend? I think I read that cancer cells like glutamine, so that gives me pause.
Because I started getting tingling from multiple myeloma some months before I even knew I had it, am concerned that I'm a prime candidate for this side effect. Am also diabetic, but well-controlled via diet, so did not have peripheral neuropathy from that. Hopefully I can maintain control on the dex! I started Revlimid, Velcade, and dexamethasone (RVD) induction last week ...
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Re: Supplements for peripheral neuropathy
Hi moonscape,
I have posted on this in the past, but depending on your degree of peripheral neuropathy, if it's not too bad, many people have found relief from cocoa butter (Palmer's is the most prevalent brand). Application before the peripheral neuropathy sets it, and again once it starts, applying more, has been reported to alleviate the peripheral neuropathy by some people. However, not everyone thinks it works. It appears to me to work if the peripheral neuropathy is at a relatively low level, and less so if it gets to the higher grades.
Good luck.
I have posted on this in the past, but depending on your degree of peripheral neuropathy, if it's not too bad, many people have found relief from cocoa butter (Palmer's is the most prevalent brand). Application before the peripheral neuropathy sets it, and again once it starts, applying more, has been reported to alleviate the peripheral neuropathy by some people. However, not everyone thinks it works. It appears to me to work if the peripheral neuropathy is at a relatively low level, and less so if it gets to the higher grades.
Good luck.
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JPC - Name: JPC
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