Hi Eric,
I had to laugh ... I had exactly the same thoughts regarding the melphalan and the bag of stem cells. I was very relieved when the bag was finally brought into the room.
Grant
Forums
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Grant - Name: Grant
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: April 2014
- Age at diagnosis: 43
Re: JenM's Experience - SCT at Robert Wood Johnson in NJ
How's it going? Hopefully still uneventful ...
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CARME - Name: Carme
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: August, 2014
- Age at diagnosis: 63
Re: JenM's Experience - SCT at Robert Wood Johnson in NJ
Hope things are still going OK. Looking forward to your next update.
Here in Nova Scotia, the stem cell transplant is an outpatient procedure until Day 6. I would prefer to be admitted in case of needing IV, so I'm feeling a little anxious. I'm due for the dose of melphalan on March 24, then the transplant on the 25th.
Here in Nova Scotia, the stem cell transplant is an outpatient procedure until Day 6. I would prefer to be admitted in case of needing IV, so I'm feeling a little anxious. I'm due for the dose of melphalan on March 24, then the transplant on the 25th.
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NovaBeck - Name: NovaBeck
- Who do you know with myeloma?: me
- When were you/they diagnosed?: Aug 2014
- Age at diagnosis: 58
Re: JenM's Experience - SCT at Robert Wood Johnson in NJ
Those who predicted I was probably a little overzealous in my ability to write EVERY day were absolutely right!! 
Yesterday (Day +5)
I felt okay. A bit of a one trick pony in terms of the complaints about nausea. I've been introducing small things like soup with success. The normal things that might work in regular situations (saltines, etc.) aren't cutting it for me. Last night, my husband brought me Won Ton soup and, believe it or not, it worked! Chicken noodle soup was pretty good the day or two before also. I've been sleeping very well. I'm sure the many drugs they are giving me for
Today (Day +6)
I am now on Day +6 and still doing pretty well! The biggest issue for me continues to be nausea, nausea, nausea! I feel somewhat lucky because, after reading others' experiences, I know that it could be much worse for me. I have been lucky enough to not have had any vomiting and/or diarrhea (fingers still crossed), but just this constant feeling of queasiness. I have been able to dabble in some foods, which are staying in (!), including a protein shake my husband brought from home (they tried to give me an Ensure, but figured I knew the taste of the one from home better; might make it easier to deal with).
My WBC counts bottomed out yesterday, as expected, down to 0.1 WBC. It's amazing how this happens so quickly (they were in the 40s just a few days ago) AND with the Neupogen shots.
I still haven't gotten any temps yet, which is good. They expect my hemoglobin and platelets will drop in the coming days and are preparing me for transfusions in case I need to get them. I haven’t taken any laps yet today - shame on me. Maybe I’ll try and squeeze a few in before my friend comes.
My point of view for today is this: I FEEL GRATEFUL. This could be way worse, and I have empathy as I know that, for many of the friends on this site, it has been. I ate little bit today (the protein shake and some hospital mac & cheese), I am waiting for a visit from a friend who is bringing me soup, and I sort of feel hungry for it (crazy!). I am definitely fatigued and, after being up for the past few hours talking with friends, communicating, etc., I am confident I will get a GOOD night of sleep tonight!
More to come in the next few days ...
#gameon
Yesterday (Day +5)
I felt okay. A bit of a one trick pony in terms of the complaints about nausea. I've been introducing small things like soup with success. The normal things that might work in regular situations (saltines, etc.) aren't cutting it for me. Last night, my husband brought me Won Ton soup and, believe it or not, it worked! Chicken noodle soup was pretty good the day or two before also. I've been sleeping very well. I'm sure the many drugs they are giving me for
Today (Day +6)
I am now on Day +6 and still doing pretty well! The biggest issue for me continues to be nausea, nausea, nausea! I feel somewhat lucky because, after reading others' experiences, I know that it could be much worse for me. I have been lucky enough to not have had any vomiting and/or diarrhea (fingers still crossed), but just this constant feeling of queasiness. I have been able to dabble in some foods, which are staying in (!), including a protein shake my husband brought from home (they tried to give me an Ensure, but figured I knew the taste of the one from home better; might make it easier to deal with).
My WBC counts bottomed out yesterday, as expected, down to 0.1 WBC. It's amazing how this happens so quickly (they were in the 40s just a few days ago) AND with the Neupogen shots.
I still haven't gotten any temps yet, which is good. They expect my hemoglobin and platelets will drop in the coming days and are preparing me for transfusions in case I need to get them. I haven’t taken any laps yet today - shame on me. Maybe I’ll try and squeeze a few in before my friend comes.
My point of view for today is this: I FEEL GRATEFUL. This could be way worse, and I have empathy as I know that, for many of the friends on this site, it has been. I ate little bit today (the protein shake and some hospital mac & cheese), I am waiting for a visit from a friend who is bringing me soup, and I sort of feel hungry for it (crazy!). I am definitely fatigued and, after being up for the past few hours talking with friends, communicating, etc., I am confident I will get a GOOD night of sleep tonight!
More to come in the next few days ...
#gameon
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JenM - Name: JenM
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: October 2014
- Age at diagnosis: 42
Re: JenM's Experience - SCT at Robert Wood Johnson in NJ
Hi Jen,
It sounds like you are holding up fairly well so far, which is great to hear. I'm not surprised that you're experiencing the nausea that you've had, but I'm impressed that you're still eating now and then. I hope things don't get any worse and that the nausea will soon go away.
Thanks for keeping us posted on how you are doing. Good luck!
It sounds like you are holding up fairly well so far, which is great to hear. I'm not surprised that you're experiencing the nausea that you've had, but I'm impressed that you're still eating now and then. I hope things don't get any worse and that the nausea will soon go away.
Thanks for keeping us posted on how you are doing. Good luck!
Re: JenM's Experience - SCT at Robert Wood Johnson in NJ
Hello Jen,
It's been a while since you posted here, so I suspect things became a lot harder for you soon after your last update. Regardless of what happened, I hope that you're now on the upswing, gaining more and more energy each day, and that the worst is well behind you.
Good luck!
It's been a while since you posted here, so I suspect things became a lot harder for you soon after your last update. Regardless of what happened, I hope that you're now on the upswing, gaining more and more energy each day, and that the worst is well behind you.
Good luck!
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