Thank you to everyone who have responded to my post. I am really happy I found this forum and all of you. I will definitely drink lots of water, slower rate on I.V. and try the walking. I'm hoping this time around I tolerate it better.
Living alone with some of this stuff is tough, but I realize it could be worse. I try to be positive just like my blood type B+. Thanks again!
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Re: Starting Zometa once a month - anyone else?
I had my 1st monthly infusion last week. I drank a lot of water the day before and the nurse gave me saline along with the Zometa. She also issued it over 45 min.
I am pleased to say that this time I felt pretty good. A little tired but nothing like the first time.
I am pleased to say that this time I felt pretty good. A little tired but nothing like the first time.
Re: Starting Zometa once a month - anyone else?
I've been on monthly Zometa for almost a year. Luckily, I've not had any bad side effects. The cancer clinic where I get it gives me 2 Tylenol (paracetamol, acetaminophen), longer drip time of 45 minutes and they suggest taking Claritin (loratadine) to alleviate discomfort. Who would have thought Claritin??
Good luck, everyone, with your infusions!
Good luck, everyone, with your infusions!
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Lisa Stephenson - Name: Lisa Stephenson
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: June 2014
- Age at diagnosis: 61
Re: Starting Zometa once a month - anyone else?
So, may I ask what the premise is for those of you on monthly Zometa infusions? Is it prophylactic for high-risk smoldering myeloma, or is it because of osteopenia or osteoporosis?
Your responses are appreciated.
J
Your responses are appreciated.
J
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jhorner - Name: Magpie
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: 2013
- Age at diagnosis: 49
Re: Starting Zometa once a month - anyone else?
Hi Lisa, that is weird about Claritin. I take it everyday for my crazy allergies. Maybe that contributed to me feeling better this time!
Hi Jhorner - My doctor prescribed the once-a-month dose after my bone marrow biopsy. I also have osteoporosis, but the usual course for osteoporosis is a once-a-year infusion. I have high lambda light chain of 850, so I think my doctor wants to be more cautionary at this point.
Hope everyone has a great week!
Hi Jhorner - My doctor prescribed the once-a-month dose after my bone marrow biopsy. I also have osteoporosis, but the usual course for osteoporosis is a once-a-year infusion. I have high lambda light chain of 850, so I think my doctor wants to be more cautionary at this point.
Hope everyone has a great week!
Re: Starting Zometa once a month - anyone else?
After remission 7 months ago, I started a Zometa IV infusion once per month. After the first treatment, I got sick, weak, and vomited several times. I was ready to discontinue.
Called my nurse practitioner and she suggested that I take loratadine (Claritin) immediately and before and after each treatment. It worked and I've done fine ever since. They don't know how or why it works.
Called my nurse practitioner and she suggested that I take loratadine (Claritin) immediately and before and after each treatment. It worked and I've done fine ever since. They don't know how or why it works.
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Danleb - Name: Danleb Daniel Lebenstein
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: March 2015
- Age at diagnosis: 59
Re: Starting Zometa once a month - anyone else?
I started Zometa Thursday, the 16th of June. Friday morning at 2 a.m., I got hit with all the side effects. I will be trying the Claritin and walking next month.
I am starting Revlimid, dex and next month Ninlaro will be added. My journey begins.
I am starting Revlimid, dex and next month Ninlaro will be added. My journey begins.
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