My oncologist is not a specialist in myeloma. There is an oncologist at Indiana University Cancer Center who specializes in myeloma. I am considering switching doctors and think the time to do it is in the early stages of this disease.
One thing that really turned me off about my oncologist was in the very beginning. They found the plasmacytoma in the scapula and were just starting to do all the other tests necessary - skeletal survey, 24 hour urine tests and bone marrow biopsy. I did my research about what a 24 hour urine test is supposed to tell them and read all about the Bence Jones protein prior to the appointment for the biopsy.
So..going in for the BMB, I brought my significant other. The doctor walked into the room, seemed surprised I had brought along support, and I said I had some questions. (I wanted to know what the urine test revealed and if Bence Jones was present). Not a lengthy discussion, just a couple of questions.
He said "I can either sit here and answer your questions or do the bone marrow biopsy, but I don't have time for both. If you want to talk, we will have to put the biopsy off for another time."
Wow! Talk about a put off!! I asked the question quickly and then said "proceed with the biopsy." I definitely think I would be better off with a specialist in myeloma and you all have reinforced my belief that that is what I need to do.
