[majolica]

STABLE LESIONS WITHOUT TREATMENT

by majolica on Tue Jul 19, 2011 2:05 pm

Hello,
I am new to this site and I have several questions. First, I have IgG lambda mgus and (AVWD).
My m-spike has remained stable. I have had 2 bone surveys. One in 2006 & one in May 2011. My questions are...Can a dominant lesion in the humerus and multiple bone lucencies throughout the body remain stable WITHOUT any kind of treatments? Could my Vit d supplements have kept them stable? Was also told I have bad osteoporosis. The GP wanted to start me on fosamax after my first dexa scan this year but the pharmacist told me its to early to start on the bone meds since you can only be on them for 10 years. I am only 49. Why do some mgus patients have alot of symptoms while others don't? I feel worse then most multiple myeloma patients online? Yet, I am stable. My acquired bleeding condition has caused me problems as well. Thanks

[Anonymous]

Re: STABLE LESIONS WITHOUT TREATMENT

by Anonymous on Thu Mar 08, 2012 5:32 pm

not to be nit picky but

It is not fair to say you feel worse then most Multiple Myeloma patients because you do not actually have multiple myeloma so you do not actually know how it feels.

on another level, you have not hear the words "you have cancer" so you can not truly understand the emotional tole this takes on your life.

[MarieK]

Re: STABLE LESIONS WITHOUT TREATMENT

by MarieK on Wed Mar 28, 2012 12:05 pm

Can I suggest that firstly you get yourself to an onco-haematologist. I am no expert but I feel that a GP is just not enough. A GP can handle the ongoing management on the haematologist's directions. Secondly, and I say this with all humility, you need to clarify with your doctor as to why he/she is telling you that you have MGUS when you have any lytic lesions. One of the criteria for MGUS is that you have absolutely no lytic lesions at all. At 49 and with osteoporosis it sounds like this is how multiple myeloma is affecting you. There is no reason for a 49 year old to have osteoporosis for any reason of aging. Refer to the Staging Systems for multiple myeloma on the net and see for yourself. Many GPs or family doctors as they are called in USA know very very little about multiple myeloma because they don't see it often enough. I doubt very much that Vit D supplements or any other supplements will have had any impact on your test results. A specialist physician can help you sort this out because I don't think the GP is on the right track if this is what he/she is saying. Just my opinion.