The Myeloma Beacon

Independent, up-to-date news and information for the multiple myeloma community.
Home page Deutsche Artikel Artículos Españoles

Forums

Questions and discussion about smoldering myeloma (i.e., diagnosis, risk of progression, potential treatment, etc.)

Re: Smoldering for 16 years, but paralyzed with fear

by GoDucks on Tue Feb 19, 2019 12:31 am

It certainly can be a struggle. I'm one year out from an autologous stem cell transplant, doing really well but recovering from a really nasty respiratory virus that my "toddler" immune system couldn't handle. Some days are definitely harder than others, but here's what's been true for me since the beginning:

My myeloma has changed everything, and it's changed nothing. I still don't know how, when, or where I'm going to die. No one does and it's inevitable. It might be myeloma, or I could get hit by a bus, or something else. It might happen tomorrow, or in 20+years. Meanwhile, my life goes on, and I enjoy it. Most days I'm able to wake up and say with confidence, "Nothing bad is going to happen today," and that is enough.

Please be kind to yourself and allow yourself to just be.

GoDucks
Name: GoDucks
Who do you know with myeloma?: me
When were you/they diagnosed?: March, 2017
Age at diagnosis: 61

Previous

Return to Smoldering Myeloma