Hi,
I had a CT scan the June 16 and it shows two small lytic lesion on the skull. I was told it could be multiple myeloma, so I was sent to a neurosurgeon for a biopsy, but he said I need to see oncologists. So I contacted them and they don't want to see me till I have a biopsy.
Should I worry about these two small lytic lesion? What can I do?
My symptoms are as follow: horrible headaches, stiffness on my neck feels like burning there, lower back pain, fatigue, nausea, i get really sleepy, get chills, and my arms are starting to hurt.
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Re: Skull lytic lesions, but caught in referral trap
Hi Melody,
How frustrating.
How old are you?
Under the circumstances, here's what I would suggest. Get a copy of your CT scan radiology report and then go to your primary care physician. Have your PCP run the following basic screen tests for myeloma (these are all simple lab tests that are based on blood draws):
Comprehensive Metabolic Panel
CBC
Quantified Immunoglobulins Test (IgG, IgA and IgM)
Serum Protein Electrophoresis
Serum Immunofixation
Serum Free Light Chain Assay
With the results from the above lab tests, you can rule out nearly all forms of myeloma, with the exception of some fairly rare "non-secretory" types. A PCP would look for signs of anemia, renal insufficiency, elevated proteins or globulins and/or hypercalcemia on the first two tests to see if myeloma might be in play. An elevated immunoglobulin level on the third test might also suggest myeloma. However, the combined results of the last three tests will pretty definitively tell you if you do or don't have one of the more common forms of myeloma. With all of those tests results in hand, a PCP could then refer you to a hematologist/oncologist if myeloma is indeed indicated by the lab tests.
Hope this helps. Let us know how things turn out.
How frustrating.
How old are you?
Under the circumstances, here's what I would suggest. Get a copy of your CT scan radiology report and then go to your primary care physician. Have your PCP run the following basic screen tests for myeloma (these are all simple lab tests that are based on blood draws):
Comprehensive Metabolic Panel
CBC
Quantified Immunoglobulins Test (IgG, IgA and IgM)
Serum Protein Electrophoresis
Serum Immunofixation
Serum Free Light Chain Assay
With the results from the above lab tests, you can rule out nearly all forms of myeloma, with the exception of some fairly rare "non-secretory" types. A PCP would look for signs of anemia, renal insufficiency, elevated proteins or globulins and/or hypercalcemia on the first two tests to see if myeloma might be in play. An elevated immunoglobulin level on the third test might also suggest myeloma. However, the combined results of the last three tests will pretty definitively tell you if you do or don't have one of the more common forms of myeloma. With all of those tests results in hand, a PCP could then refer you to a hematologist/oncologist if myeloma is indeed indicated by the lab tests.
Hope this helps. Let us know how things turn out.
-
Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
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