Hi.
New to the forum.
Can anyone tell me if they have had side effects of numbing lips, tongue and cheek area from VCD (CyBorD) [Velcade-cyclophosphamide (Cytoxan)-dexamethasone] therapy?
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Re: Side effects of VCD / CyBorD?
I am undergoing CyBorD treatment and I have not experienced that. Treatment has been pretty easy on me. Be sure to run this by your oncologist. Good luck.
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kjpoppit - Name: Kim Nelson
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Sept. 19th, 2013
- Age at diagnosis: 47
Re: Side effects of VCD / CyBorD?
Florence, are you getting Zometa (zolendonic acid) treatments for bones as well? I am getting CyBorD, and haven't had those symptoms, but have been asked to look out for any numbing on the lips or pain/numbing along the jaw as a side effect of Zometa.
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StandingTall - Who do you know with myeloma?: Me! yay!!
- When were you/they diagnosed?: Sept. 2013
- Age at diagnosis: 39
Re: Side effects of VCD / CyBorD?
I have been on VCD for almost a year. The symptoms are relatively new and occur about 3 days after therapy. I have had a Zometa infusion but it was about 4 months ago.
Re: Side effects of VCD / CyBorD?
Hi Florence.
I am including the link of a reply I posted earlier that is more detailed but the short story on my side effects from my VCD experience is:
Some foods do not taste as good but the metal taste is not consistent with everything I eat - just certain things I taste. When I do notice that the metal taste/numbness it is when I am not eating but I dont recall how long it lasts. No real appetite loss but the lack of energy makes catching that food prep window hard, if I miss it I will pass on food altogether. Dry mouth is on and off but does not come on strong until around Thursday. Fatigue for me is constant along with the difficulty focusing. Back pain is consistent and painful with the wrong movements.
Mild headache starts within 2 hours of finishing treatment, nothing debilitating just a 'hum' of pain in my head that lasts for most of the week. My treatment starts on Monday and the side effects usually become less intense around the weekend and allow me to have a normal Saturday- Sunday w 'minimal' (more manageable) symptoms.
https://myelomabeacon.org/forum/new-velcade-treatment-t2729.html#p14846
I am including the link of a reply I posted earlier that is more detailed but the short story on my side effects from my VCD experience is:
Some foods do not taste as good but the metal taste is not consistent with everything I eat - just certain things I taste. When I do notice that the metal taste/numbness it is when I am not eating but I dont recall how long it lasts. No real appetite loss but the lack of energy makes catching that food prep window hard, if I miss it I will pass on food altogether. Dry mouth is on and off but does not come on strong until around Thursday. Fatigue for me is constant along with the difficulty focusing. Back pain is consistent and painful with the wrong movements.
Mild headache starts within 2 hours of finishing treatment, nothing debilitating just a 'hum' of pain in my head that lasts for most of the week. My treatment starts on Monday and the side effects usually become less intense around the weekend and allow me to have a normal Saturday- Sunday w 'minimal' (more manageable) symptoms.
https://myelomabeacon.org/forum/new-velcade-treatment-t2729.html#p14846
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blayz - Who do you know with myeloma?: Self
- When were you/they diagnosed?: November 2013
- Age at diagnosis: 45
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