[Tori]

Side effects of stopping thalidomide

by Tori on Sun May 03, 2015 10:54 pm

Hi to all Myeloma Beacon members,

My oncologist has taken me off thalidomide for a few months due to neuropathy. I have now been off the thalidomide for two weeks, and I am feeling very nauseous and fatigued.

I would really appreciate to hear from anyone who has withdrawn from thalidomide, what they experienced, and for how long, as I may not be able to start back on my medication for several months.

Unfortunately under the Australian system, I cannot be changed over to a replacement drug at the moment.

[Cheryl G]

Re: Side effects of stopping thalidomide

by Cheryl G on Mon May 04, 2015 12:56 pm

Hi Tori!

I'm really sorry to hear about your nausea and fatigue. You really can't win sometimes when it comes to myeloma; you get side effects while you're being treated, and then other side effects come up when you stop treatment

I'm wondering if it is really the thalidomide that is causing problems, or if perhaps it was some other drug you might have been taking at the same time. Were you being treated with anything else at the same time as the thalidomide -- for example, dex, or Cytoxan? And, if you also were getting other treatments, have they also been stopped?