Dear members,
I am from Germany, live in France, and want to know if here are any patients with both myeloma (MGUS) and scleredema (Buschke disease, scleredema of Buschke) and how you are treated.
In the moment, I help myself, but I want to know a lot of informations.
Thank you for your response.
Best regards,
AngelR
Forums
3 posts
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Re: Anyone with scleredema & MGUS or myeloma?
Hello. I am in Texas, USA. I am ANA positive for systemic sclerosis, and now have a tentative diagnosis of MGUS. I will have my first appointment August 10 with an oncologist. I will post back with the results of that visit.
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PlanTime - Name: ~Dessa~
- Who do you know with myeloma?: Possibly me
- When were you/they diagnosed?: July 2015
- Age at diagnosis: 51
Re: Anyone with scleredema & MGUS or myeloma?
I was surprised to see your post. I was diagnosed with systemic sclerosis in 2008. Shortly before, my father lost his fight with multiple myeloma and amyloidosis. His brother is also fighting multiple myeloma.
I was diagnosed with IgA lambda MGUS in March 2016. I was polyclonal IgA for a few years. I had no idea polyclonal could become monoclonal. Based on what I have read, I have a higher chance of progressing because I have 2 primary relatives diagnosed with multiple myeloma.
I was diagnosed with IgA lambda MGUS in March 2016. I was polyclonal IgA for a few years. I had no idea polyclonal could become monoclonal. Based on what I have read, I have a higher chance of progressing because I have 2 primary relatives diagnosed with multiple myeloma.
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LMS1966 - Name: LMS
- Who do you know with myeloma?: my father and uncle
- When were you/they diagnosed?: 2006/2008
- Age at diagnosis: 63
3 posts
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