Just read an article in New York Times about scalp cooling to prevent hair loss from chemotherapy. It's nearing FDA approval.
Has anyone heard of this?
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gardengirl - Name: gardengirl
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Nov. 2013
- Age at diagnosis: 47
Re: Scalp cooling to prevent hair loss from chemotherapy
Gardengirl, There are quite a few women who are doing it in the chemo infusion room to which I go to get my Velcade injections. (I am located in Washington, D.C.)
Re: Scalp cooling to prevent hair loss from chemotherapy
Hi GardenGirl,
My mother underwent intensive chemotherapy for breast cancer 25 years ago. It was carried out at her local oncologist's office in rural central Pennsylvania. I guess the oncologist was ahead of the curve, though, as he had several scalp cooling units in his office even back then. My mother didn't lose any hair during the chemotherapy.
She's also still alive today, by the way, having turned 80 this past December. The chemo, plus two mastectomies within a year's time, apparently did what they were supposed to do.
My mother underwent intensive chemotherapy for breast cancer 25 years ago. It was carried out at her local oncologist's office in rural central Pennsylvania. I guess the oncologist was ahead of the curve, though, as he had several scalp cooling units in his office even back then. My mother didn't lose any hair during the chemotherapy.
She's also still alive today, by the way, having turned 80 this past December. The chemo, plus two mastectomies within a year's time, apparently did what they were supposed to do.
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Boris Simkovich - Name: Boris Simkovich
Founder
The Myeloma Beacon
Re: Scalp cooling to prevent hair loss from chemotherapy
I know of one woman with breast cancer who did the scalp cooling and still lost all her hair.
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torimooney - Name: tori
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: apr 2012
- Age at diagnosis: 64
Re: Scalp cooling to prevent hair loss from chemotherapy
I am getting ready to endure high dose chemo and don't want to lose my hair. Should I ask my BMT about this? or my oncologist? Does anyone know?
Thanks Rhonda
Thanks Rhonda
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Rhonda - Who do you know with myeloma?: myself
- When were you/they diagnosed?: September 2014
- Age at diagnosis: 54
Re: Scalp cooling to prevent hair loss from chemotherapy
I went for my Velcade injection this morning and took the opportunity to ask my nurse about the cooling cap. She said that its success rate depends on the drug regimen administered to the patient. She said that it does not seem to work for myeloma patients and our doctors routinely advise that it probably will not prevent hair loss. She said that the cooling caps needed to be rented from the company, Penguin Cold Caps, but that the practice has the freezer on the premises. The process is quite expensive, but she could not give me a monetary figure.
So wonderful to hear that Boris's mother used the cooling cap successfully so many years ago and that she is a long-time survivor of breast cancer. I got the impression from my attending nurse that the cooling cap is best when used for breast cancer patients, but even there the kind of drugs being used is the key to success.
So wonderful to hear that Boris's mother used the cooling cap successfully so many years ago and that she is a long-time survivor of breast cancer. I got the impression from my attending nurse that the cooling cap is best when used for breast cancer patients, but even there the kind of drugs being used is the key to success.
Last edited by mrozdav on Thu Aug 13, 2015 10:53 pm, edited 1 time in total.
Re: Scalp cooling to prevent hair loss from chemotherapy
I believe the principal behind how scalp cooling works is that it slows the metabolic rate of the cells that grow hair, so they are not as affected by the chemotherapy drugs, which work by targeting cells with high metabolic rates, like cancer cells. I can see where how effective this is would be greatly dependent on what types of drugs are being used and how aggressive the treatment is. At some point, I can see where aggressiveness and potency of the chemo drugs are simply going to overcome the effect of cooling the scalp.
Best of luck with this,
Eric
Best of luck with this,
Eric
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Eric Hofacket - Name: Eric H
- When were you/they diagnosed?: 01 April 2011
- Age at diagnosis: 44
Re: Scalp cooling to prevent hair loss from chemotherapy
Thanks for the follow-up, Mrozdav, and for sharing with us what you learned.
I can't say I'm surprised that the success of the cooling varies depending on the treatment regimen the patient is using. I am surprised to hear that it is expensive, since the principle behind it is relatively simple.
Eric - I have the same intuition that you do regarding both how the cooling works and how the intensity of the treatment regimen affects whether the cooling will be effective in preventing hair loss. That said, my mother's treatment regimen was intense. It involved three or four traditional chemotherapies administered in high doses, once a month, for nine months. During the latter cycles, she actually had to be hospitalized several days after each dose of the chemotherapy because of the strong side effects she had.
I can't say I'm surprised that the success of the cooling varies depending on the treatment regimen the patient is using. I am surprised to hear that it is expensive, since the principle behind it is relatively simple.
Eric - I have the same intuition that you do regarding both how the cooling works and how the intensity of the treatment regimen affects whether the cooling will be effective in preventing hair loss. That said, my mother's treatment regimen was intense. It involved three or four traditional chemotherapies administered in high doses, once a month, for nine months. During the latter cycles, she actually had to be hospitalized several days after each dose of the chemotherapy because of the strong side effects she had.
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Boris Simkovich - Name: Boris Simkovich
Founder
The Myeloma Beacon
Re: Scalp cooling to prevent hair loss from chemotherapy
Just thinking out loud ... I wonder, if scalp cooling works by slowing the metabolic rate of hair cells, brain cells also have a high metabolic rate. So I wonder if cooling the brain a little also would help with chemo brain.
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Eric Hofacket - Name: Eric H
- When were you/they diagnosed?: 01 April 2011
- Age at diagnosis: 44
Re: Scalp cooling to prevent hair loss from chemotherapy
Cooling constricts the blood vessels in the scalp and restricts blood flow to the hair follicles. Hair loss is reduced because less of the drug is able to reach the follicles. However, this also means that any myeloma cells in the blood vessels of the scalp will also be spared. As a consequence scalp cooling is generally not recommended for blood cancers such as myeloma.
See link below:
http://www.nhs.uk/ipgmedia/National/Macmillan%20Cancer%20Support/assets/Scalpcooling.pdf
See link below:
http://www.nhs.uk/ipgmedia/National/Macmillan%20Cancer%20Support/assets/Scalpcooling.pdf
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barryo
15 posts
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