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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Salty taste in mouth - Revlimid? / Allopurinol?

by coachhoke on Tue Jun 25, 2019 8:17 am

I still have the bad taste after six years on and off Revlimid (2.5 mg). I've discussed it with people (doctors, pharmacists, and patients). I still have not received any valid reasons for it, and I just continue to treat the symptoms with lozenges and mouthwash.

coachhoke
Name: coachhoke
When were you/they diagnosed?: Apri 2012
Age at diagnosis: 71

Re: Salty taste in mouth - Revlimid? / Allopurinol?

by Pippy on Tue Jun 25, 2019 10:18 am

I am late to this discussion, but I just wanted to validate your symptom, since I, too, have a weird salty taste thing. I was just talking about it last night, actually, since dinner tasted crazy salty. Other days, food tastes so bland I put on extra salt and it's clearly way to salty for the rest of my family. I used to be a pretty good cook, and even as a child, I was the one in the family my mother turned to to season the food. But now I no longer trust myself to season anything. I am on Pomalyst 1 mg, 21on/7off, and I blame that. I feel really badly for those of you who are really suffering from this; mine is not debilitating at all, just sad and depressing. I'll let you know if I come across anything to help.

Pippy

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