Hi Smarty,
By "massive", I mean I take 2g of C3 curcumin with bioperine twice daily (4g total daily). A normal dose is more along the lines of 1g daily. Many smoldering patients take upwards of 8g of curcumin daily. You can find many threads about curcumin dosing on this forum.
Arthritis runs deep in my family and my father had very debilitating rheumatoid arthritis. What brought on my latest visit to the doctor was pain in my hands after an intense number of all-day outdoor projects that involved hammering for hours at a time at strange angles, lots of heavy lifting and handling some big, heavy power tools for long periods of time. I had abused my hands so much that it felt like I had broken one of my metacarpals (the long finger bones that run through the palm). Turns out that I thankfully had no fractures whatsover.
I've been taking curcumin at this kind of dosage level for over 6 years now with no ill effects whatsoever. I'm therefore doubting that the curcumin is to blame for my current situation. But many thanks for the idea. I should know in a couple of weeks whether I have osteo or rheumatoid arthritis.
Forums
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Rheumatoid arthritis drugs and smoldering myeloma
Hi Multibilly and All,
I did try taking curcurmin supplements as you describe back in 2014. I was relapsing anyways, and continued to do so, it seemed at a faster pace than before! So I discontinued taking curcurmin. My oncology nurse said that if I was on treatments for myeloma, they would be concerned if I took supplements, but otherwise it was up to me what I took. I don't think that curcurmin supplements helped me, actually!
Sorry to hear about the injuries to your hand, Multibilly, and hope that you don't have rheumatoid arthritis!
I did try taking curcurmin supplements as you describe back in 2014. I was relapsing anyways, and continued to do so, it seemed at a faster pace than before! So I discontinued taking curcurmin. My oncology nurse said that if I was on treatments for myeloma, they would be concerned if I took supplements, but otherwise it was up to me what I took. I don't think that curcurmin supplements helped me, actually!
Sorry to hear about the injuries to your hand, Multibilly, and hope that you don't have rheumatoid arthritis!
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Rheumatoid arthritis drugs and smoldering myeloma
Hi Multibilly,
Thanks for your reply. As myeloma is different for all, I'm sure treatments, whether natural or medical, also vary.
If I may presume to offer you advice, it would be to take it easy with the heavy duty work. I have no idea of your age, and with myeloma I'm not sure that matters, but why risk having a bone break? Exercise is important, and I walk whenever possible, usually daily, but have limited any heavy work that I would have taken on before. Unfortunately, heredity is something we are stuck with, but maintaining best health possible is about all we can do to fight it.
Please take good care of yourself and hoping your test results are favorable.
Thanks for your reply. As myeloma is different for all, I'm sure treatments, whether natural or medical, also vary.
If I may presume to offer you advice, it would be to take it easy with the heavy duty work. I have no idea of your age, and with myeloma I'm not sure that matters, but why risk having a bone break? Exercise is important, and I walk whenever possible, usually daily, but have limited any heavy work that I would have taken on before. Unfortunately, heredity is something we are stuck with, but maintaining best health possible is about all we can do to fight it.
Please take good care of yourself and hoping your test results are favorable.
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smarty - Name: Marti
- Who do you know with myeloma?: myself Smoldering Myeloma
- When were you/they diagnosed?: May 1, 2015
- Age at diagnosis: 76
Re: Rheumatoid arthritis drugs and smoldering myeloma
Hello,
Here is my idea (good or not): Why not go first to the simplest?
I hear a lot about the great interest of looking after our microbiota right now. The microbiota would regulate health, and a poor balance could cause joint pain, inflammation, and many diseases, etc. The intestines contain a large part of our immunity. And what we eat, or the medications we take, can hurt him.
The microbiota must be balanced step by step and accurately. Taking prebiotics is not enough. Only a doctor (nutritionist, etc.) can give the procedure to follow.
Jacqueline
Here is my idea (good or not): Why not go first to the simplest?
I hear a lot about the great interest of looking after our microbiota right now. The microbiota would regulate health, and a poor balance could cause joint pain, inflammation, and many diseases, etc. The intestines contain a large part of our immunity. And what we eat, or the medications we take, can hurt him.
The microbiota must be balanced step by step and accurately. Taking prebiotics is not enough. Only a doctor (nutritionist, etc.) can give the procedure to follow.
Jacqueline
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Jacqueline - Name: Jacqueline
- When were you/they diagnosed?: november 2010
- Age at diagnosis: 53
Re: Rheumatoid arthritis drugs and smoldering myeloma
Good news. I just got my lab results back (which includes testing one's rheumatoid factor, CRP, SED rate, ANA, etc). All lab tests came back negative. Given how debilitating rheumatoid arthritis proved to be for my father, I am quite relieved. But I guess I still have to deal with the reality of osteoarthritis (as do many of us).
Lesson learned here is that heavy manual work can really take it's toll on you in your 60's. And what used to heal in a matter of days, now seems to take a couple of months to heal as I get older.
Thanks all.
Lesson learned here is that heavy manual work can really take it's toll on you in your 60's. And what used to heal in a matter of days, now seems to take a couple of months to heal as I get older.
Thanks all.
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Rheumatoid arthritis drugs and smoldering myeloma
Great news, Multibilly!
Osteoarthritis comes to all. Getting old is no fun. It does, however, beat the alternative.
Osteoarthritis comes to all. Getting old is no fun. It does, however, beat the alternative.
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dianaiad - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Officially...March 2013
- Age at diagnosis: 63
Re: Rheumatoid arthritis drugs and smoldering myeloma
Good news indeed. Crisis averted.
Should we discuss age appropriate activities
Fred
Should we discuss age appropriate activities
Fred
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Farcical - Name: Fred
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: March 2018
- Age at diagnosis: 66
Re: Rheumatoid arthritis drugs and smoldering myeloma
Age appropriate activities?
Hmnnn. I guess I'm going to give up my plan to scale Mt. Everest this summer and go hike Yellowstone instead. After all, one never knows when it's going to blow, and I don't think that hiking around a volcano would be much fun.
Mind you, I'd rather get in my car and circumnavigate the USA; up the west coast, across the top, flirting with the Canadian border, down the east coast, across the gulf to Texas, up through the middle and then home. That's appropriate for any age, right?
I suppose I could give up tennis and marathons, but I hate tennis, and I don't run, so giving them up wouldn't be a problem.
What would be 'age appropriate?"
At our age, is there anything that wouldn't be 'age appropriate?' It is one of the few things that I like about getting old. There really isn't anything that isn't age appropriate.
Except getting pregnant. Thank heavens.
Hmnnn. I guess I'm going to give up my plan to scale Mt. Everest this summer and go hike Yellowstone instead. After all, one never knows when it's going to blow, and I don't think that hiking around a volcano would be much fun.
Mind you, I'd rather get in my car and circumnavigate the USA; up the west coast, across the top, flirting with the Canadian border, down the east coast, across the gulf to Texas, up through the middle and then home. That's appropriate for any age, right?
I suppose I could give up tennis and marathons, but I hate tennis, and I don't run, so giving them up wouldn't be a problem.
What would be 'age appropriate?"
At our age, is there anything that wouldn't be 'age appropriate?' It is one of the few things that I like about getting old. There really isn't anything that isn't age appropriate.
Except getting pregnant. Thank heavens.
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dianaiad - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Officially...March 2013
- Age at diagnosis: 63
Re: Rheumatoid arthritis drugs and smoldering myeloma
Dianaiad said:
Couldn’t agree more. Sometimes my advice and my actions diverge. I put in 162 miles on my bicycle last week. Totally age appropriate.
Cheers
Fred
What would be "age appropriate?"
At our age, is there anything that wouldn't be 'age appropriate?' It is one of the few things that I like about getting old. There really isn't anything that isn't age appropriate.
Couldn’t agree more. Sometimes my advice and my actions diverge. I put in 162 miles on my bicycle last week. Totally age appropriate.
Cheers
Fred
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Farcical - Name: Fred
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: March 2018
- Age at diagnosis: 66
Re: Rheumatoid arthritis drugs and smoldering myeloma
Dear Jean Ruth Howard:
I am doing exactly what you wrote (curcumin). I take heavy dose of turmeric (home-made powder) concoction which includes milk, ghee (clarified butter; virgin coconut oil can substitute ghee), honey, and black pepper. My two symptoms of autoimmune diseases, hearing loss and rheumatoid arthritis, has improved. I had tough time to walk from bed to restroom. Now i can walk almost half a mile without cane. I have no pain.
I am extremely G6PD deficient and have been taking care of my diet for the last 68 years. I have diet control related G6PD and I avoid all food which a cancer person needs to avoid. My diet has no processed food, no red meat, no crustaceans, no legumes, no Sugar (honey is ok), no salt.
plenty of fresh fruits and vegetables, all non GMO. I do take eggs (two a day), also nuts (almond, pistachio, cashew nuts, and walnuts; approximately 100 grams a day).
Thank you.
I am doing exactly what you wrote (curcumin). I take heavy dose of turmeric (home-made powder) concoction which includes milk, ghee (clarified butter; virgin coconut oil can substitute ghee), honey, and black pepper. My two symptoms of autoimmune diseases, hearing loss and rheumatoid arthritis, has improved. I had tough time to walk from bed to restroom. Now i can walk almost half a mile without cane. I have no pain.
I am extremely G6PD deficient and have been taking care of my diet for the last 68 years. I have diet control related G6PD and I avoid all food which a cancer person needs to avoid. My diet has no processed food, no red meat, no crustaceans, no legumes, no Sugar (honey is ok), no salt.
plenty of fresh fruits and vegetables, all non GMO. I do take eggs (two a day), also nuts (almond, pistachio, cashew nuts, and walnuts; approximately 100 grams a day).
Thank you.
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MMFeb16,15 - Who do you know with myeloma?: Self
- When were you/they diagnosed?: February 16, 2015
- Age at diagnosis: 66
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