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Can Revlimid cause broken blood vessels in the retina?

by AnnM on Tue Jun 16, 2015 6:18 pm

Does Revlimid and/or multiple myeloma cause retina problems?

My husband is in remission with Revlimid 10 mg, 3 weeks on,1 week off, and monthly Zometa IV. His opthamologist treated him today with injections in both eyes, one eye having a broken blood vessel in the retina. Anyone else with this issue?

Diagnosed in January 2014, treated with Revlimid, dex, and Velcade for 7 months, remission since September 2014.

Fortunately, he has had no serious side effects from the start.

AnnieB

AnnM

Re: Can Revlimid cause broken blood vessels in the retina?

by Ian on Wed Jun 17, 2015 4:37 am

Hello Annie,

A question similar to yours was asked here in the forum last October. There were several responses to it which you may find helpful:

"Burst blood vessel in eye - Revlimid side effect?" (started Oct 10, 2014)

The consensus in the responses to the previous question seemed to be that the problem probably was caused by something else. It could be just "old age," or possibly the use of blood thinners, which is common in people taking Revlimid. It also doesn't seem to be something to be too concerned about.

Glad your husband has been doing well on treatment.

Ian

Re: Can Revlimid cause broken blood vessels in the retina?

by rumnting on Wed Jun 17, 2015 8:37 am

There is a huge difference in a "broken blood vessel in the eye" (something that is visible just looking in the mirror), and a leaking blood vessel in the retina (seen by the ophthalmologist when looking in a dilated pupil using a microscope).

Is your husband diabetic? Did the ophthalmologist mention "wet macular degeneration"? Was your husband sent to a retinal specialist?

Leaking blood vessels in the retina can be vision threatening. If it were my family member, I would make sure they had a second opinion by an ophthalmologist that is also a retinal specialist.

rumnting
Who do you know with myeloma?: husband
When were you/they diagnosed?: 4/9/11
Age at diagnosis: 54

Re: Can Revlimid cause broken blood vessels in the retina?

by rumnting on Thu Jun 18, 2015 6:23 pm

Annie B,

The more I think about your question, the more it concerns me. I am an ophthalmic RN. Intra­ocular injections are pretty much only given for wet macular degeneration. I can think of no reason why an injection would be given in the other eye that is having "no leaks".

I highly recommend that you get a second opinion from a retinal ophthalmologist. If the first doctor WAS a retinal ophthalmologist,, I would still get the second opinion. If nothing else, you and your husband need to understand what the actual diagnosis is that caused the need for the intra­ocular injections.

rumnting
Who do you know with myeloma?: husband
When were you/they diagnosed?: 4/9/11
Age at diagnosis: 54


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