Did anyone have any cases of developing type 2 diabetes after chemo, stem cell transplant (SCT) and Revlimid? This happened to my mom. Now she's on Revlimid (5 mg), metformin and insulin injections.
She's trying with her diet to adjust it so that her sugar level won't be at 15 any longer. Yes, 15, I know it's very high. I don't know how her body does it.
If anyone has experienced the same, please do let me know.
Sandy (Canada)
PS: Where do I find a myeloma specialist? She has only been seeing an oncologist.
Forums
Re: Revlimid maintenance and its side effects
Sandy, did she also take or is taking dex? That can make blood sugars go thru the roof. Very important that she drink LOTS of water with the diabetes and walk every day, if she is able. God bless.
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Lillyput189 - Who do you know with myeloma?: Self
- When were you/they diagnosed?: MGUS 2011, multiple myeloma 2014
- Age at diagnosis: 54
Re: Revlimid maintenance and its side effects
I was diagnosed with stage 3 multiple myeloma in October 2012. I was treated with a twice weekly dose of Velcade, along with Zometa, once monthly. After it was determined that the cancer was in remission, I was put on Revlimid, 10 mg. I have been on Revlimid since April 2013. In January 2014, my oncologist said that my cancer is trying to return, and increased the Revlimid dosage to 15 mg. The side affects that I experience is like most of the others that I read about: tiredness.
The most debilitating thing that bothers me is the CIPN [chemotherapy-induced peripheral neuropathy] from the Velcade. Has anyone else experienced this problem with neuropathy and, if so, have you found anyone / anything to get relief or cure?? Thanks ... and to all that experience this disease, keep a positive attitude!
The most debilitating thing that bothers me is the CIPN [chemotherapy-induced peripheral neuropathy] from the Velcade. Has anyone else experienced this problem with neuropathy and, if so, have you found anyone / anything to get relief or cure?? Thanks ... and to all that experience this disease, keep a positive attitude!
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Pebe2736
Re: Revlimid Maintenance and its side effects
I'm new at the Revlimid maintenance thing: just two weeks into the first cycle. I have no idea what it's done to my blood counts, but I can tell you that taking it at night was a bad idea. I was told to take it at night because it might make me sleepy.
HA!
For the first week on the stuff, I got very little sleep. It was hard to get to sleep, and harder to stay asleep, and then I found out that sometimes it can 'cause sleep disturbances." So, I switched and took it in the morning. That problem was solved.
Except now I'm so dagnabbed tired by the end of the day I'm in bed by 8.
That and 'chemo-brain' seems to have increased exponentially over the last two weeks.
Well, at least I'm blaming everything on "chemo-brain." It's handy. I have to get the excuse in there before everybody remembers that I was just as ditsy before diagnosis as I am now.
HA!
For the first week on the stuff, I got very little sleep. It was hard to get to sleep, and harder to stay asleep, and then I found out that sometimes it can 'cause sleep disturbances." So, I switched and took it in the morning. That problem was solved.
Except now I'm so dagnabbed tired by the end of the day I'm in bed by 8.
That and 'chemo-brain' seems to have increased exponentially over the last two weeks.
Well, at least I'm blaming everything on "chemo-brain." It's handy. I have to get the excuse in there before everybody remembers that I was just as ditsy before diagnosis as I am now.
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dianaiad - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Officially...March 2013
- Age at diagnosis: 63
Re: Revlimid Maintenance and its side effects
Dianaiad,
I think the daytime sleepiness improves (doesn't disappear) over time. When my husband first went on it, if he sat down, he fell asleep. Now he usually takes a 20 minute nap (sitting up on the couch) on his lunch hour, but otherwise functions well.
I think the daytime sleepiness improves (doesn't disappear) over time. When my husband first went on it, if he sat down, he fell asleep. Now he usually takes a 20 minute nap (sitting up on the couch) on his lunch hour, but otherwise functions well.
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rumnting - Who do you know with myeloma?: husband
- When were you/they diagnosed?: 4/9/11
- Age at diagnosis: 54
Re: Revlimid maintenance and its side effects
Lillyput189 wrote: "Sandy, did she also take or is taking dex? That can make blood sugars go thru the roof. Very important that she drink LOTS of water with the diabetes and walk every day, if she is able. God bless."
I´m on Velcade, cyclophosphamide, and dexamethasone (VCD). The dex really made my blood sugar rise. I have to inject insulin when taking dex. When I´m off dex I´m alright if I eat alright and exercise. My father and grandmother had diabetes type II without being overweight. Just another bunch of bad genes. I could have settled with myeloma
I´m on Velcade, cyclophosphamide, and dexamethasone (VCD). The dex really made my blood sugar rise. I have to inject insulin when taking dex. When I´m off dex I´m alright if I eat alright and exercise. My father and grandmother had diabetes type II without being overweight. Just another bunch of bad genes. I could have settled with myeloma
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Mattias - Name: Mattias
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Solitary plasmacytoma 2009. Myeloma 2013
- Age at diagnosis: 39
Re: Revlimid Maintenance and its side effects
Dianaiad wrote: "I think the daytime sleepiness improves (doesn't disappear) over time. When my husband first went on it, if he sat down, he fell asleep. Now he usually takes a 20 minute nap (sitting up on the couch) on his lunch hour, but otherwise functions well."
That kind of describes me. I am still able to everything I have done before but now I take naps more often. If I have had a big day doing a lot I am in bed earlier. I can live with this, it really is a small inconvenience to endure as cancer goes. If feel lucky to have done as well as I have.
That kind of describes me. I am still able to everything I have done before but now I take naps more often. If I have had a big day doing a lot I am in bed earlier. I can live with this, it really is a small inconvenience to endure as cancer goes. If feel lucky to have done as well as I have.
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Eric Hofacket - Name: Eric H
- When were you/they diagnosed?: 01 April 2011
- Age at diagnosis: 44
Re: Revlimid maintenance and its side effects
My name is Zygfryd I have myelodysplastic syndrome (MDS), specifically refractory anemia with ringed sideroblasts (RARS).I went to check my blood and doctor diagnosed me with above problem. I was taking blood transfusion and, after doctor decided to put me on Revlimid 10 mg, hemoglobin went up, but blood count went down, so doctor put me on 5 mg and I was ok.
However, now during the 7 days when I stop to take medication, I feel very tired and sleepy and my nose is running with not stop.
If you read my problem, let me know if you have same problem and, from your experience, let me know what to do.
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Zygfryd
Re: Revlimid Maintenance and its side effects
I had also a high level of sugar when taking dexamethasone and the Velcade, but I took a home remedy and the level went from 250 to 98 in a week with this medicine.
The medicine is called feno greek and is a seed like mustard seeds, What you do is boil two tablespoons for about half an hour, than let it sit till it cools off. After that, what you do is dilute it with more water to taste and drink one glass three times a day and you'll see your sugar levels go down.
The medicine is called feno greek and is a seed like mustard seeds, What you do is boil two tablespoons for about half an hour, than let it sit till it cools off. After that, what you do is dilute it with more water to taste and drink one glass three times a day and you'll see your sugar levels go down.
Re: Revlimid maintenance and its side effects
Pebe wrote:
Pebe;
I too went through that, except I did not know what it was and my legs were killing me to the point of passing out. Finally I went to the hospital and was lucky to get a good doctor. He immediately told me it was from the Velcade. Well, I spent 6 days at the hospital cause they try a coupe of drugs to see which will work.
Finally, I end up coming home with: hydromorphone 8 mg, gabapentin 300 mg and Cymbalta (duloxetine). Within a week from taking all those drugs, I improve a lot, but three weeks later I had to stop Cymbalta because of suicidal thoughts. Now I only take gabapentin and hydromorphone for the pain and am doing so great that now I can go outside in the cold and it does not affect me.
I hope this helps and keep it up and God bless.
I was diagnosed with stage 3 multiple myeloma in October 2012. I was treated with a twice weekly dose of Velcade, along with Zometa, once monthly. After it was determined that the cancer was in remission, I was put on Revlimid, 10 mg. I have been on Revlimid since April 2013. In January 2014, my oncologist said that my cancer is trying to return, and increased the Revlimid dosage to 15 mg. The side affects that I experience is like most of the others that I read about: tiredness.
The most debilitating thing that bothers me is the CIPN [chemotherapy-induced peripheral neuropathy] from the Velcade. Has anyone else experienced this problem with neuropathy and, if so, have you found anyone / anything to get relief or cure?? Thanks ... and to all that experience this disease, keep a positive attitude!
Pebe;
I too went through that, except I did not know what it was and my legs were killing me to the point of passing out. Finally I went to the hospital and was lucky to get a good doctor. He immediately told me it was from the Velcade. Well, I spent 6 days at the hospital cause they try a coupe of drugs to see which will work.
Finally, I end up coming home with: hydromorphone 8 mg, gabapentin 300 mg and Cymbalta (duloxetine). Within a week from taking all those drugs, I improve a lot, but three weeks later I had to stop Cymbalta because of suicidal thoughts. Now I only take gabapentin and hydromorphone for the pain and am doing so great that now I can go outside in the cold and it does not affect me.
I hope this helps and keep it up and God bless.
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