[Mark11]

Re: Dealing with the uncertainty of remission - suggestions?

by Mark11 on Sun Sep 07, 2014 11:31 am

Hi DallasGG,

What you are describing is only natural for patients with a disease like myeloma. The others hit on the important points. Just to amplify what Mike F said, one of the things that keeps me in a great mental state during my remission is that I know what my next line of therapy will be if I relapse, and studies show it can be a very effective therapy in my situation. I think some of the anxiety is that patients are not confident that their next line of therapy will be effective.

If you do not have a long term treatment plan, you should ask your doctor what their strategy is if you should relapse. Knowing my doctor has a long term strategy for me has been great for my "mental QOL".

Mark

[darnold]

Re: Dealing with the uncertainty of remission - suggestions?

by darnold on Sun Sep 07, 2014 3:17 pm

Amen, Mike. You nailed it. Knowing that there are something like 50 drugs in the pipeline and incredible genetic research has been very reassuring for me.

Dana A

[RayGunter]

Re: Dealing with the uncertainty of remission - suggestions?

by RayGunter on Fri Sep 12, 2014 10:36 pm

Kent,

I am with you. I read this and had to check that I didn't write that post myself. I'm in the same situation and have all the same thoughts. So you're not alone, if that helps. However, I haven't figured out any good way to deal with this other than what others have said here already.

Good luck to you and, all things considered, I hope we have this problem for many, many years.