Hello Laura,
I am sorry to hear that your husband has experienced more of myeloma's misfortune, which you feel is due to a lack of surveillance from the medical people. I liked Barbara's post where she hoped that you could find a doctor who would be more diligent in his/her examinations, both by blood tests and other investigations. Since he is quite recently diagnosed, and had no other known health problems, I hope that he can recover from this setback.
It is a big adjustment in one's thinking to become a cancer patient, but with myeloma, there is a lot of hope now for long term survival. Please let us know how everything turns out.
Forums
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Stage at relapse & frequency of free light chain tests
I will update.
I am reassuring him that although this is a huge setback, it is still possible for him to attain another extended remission. People beat the odds constantly and go way beyond expected remission periods between relapses and in the long run, stats mean nothing when it comes to overall survivability.
We have been doing our part to ensure treatment is as successful as possible: Eating organic (100%), hydrating to the enth degree, mostly vegetarian diet with no dairy and only occasional meat (pesticide free-grass fed), lots of exercise, as well as supplements like Curamed BCM95, B6 with magnesium, D3, vitamin C, etc. I even plan our menu around "food pairing" for optimal absorption of nutrients. He lost 7 lbs in the month previous to learning he'd relapsed and I couldn't figure out why when I was feeding him enough for 3 men!
Prayers from family and friends - that is the last and most important thing on the list for extended remission!
I am reassuring him that although this is a huge setback, it is still possible for him to attain another extended remission. People beat the odds constantly and go way beyond expected remission periods between relapses and in the long run, stats mean nothing when it comes to overall survivability.
We have been doing our part to ensure treatment is as successful as possible: Eating organic (100%), hydrating to the enth degree, mostly vegetarian diet with no dairy and only occasional meat (pesticide free-grass fed), lots of exercise, as well as supplements like Curamed BCM95, B6 with magnesium, D3, vitamin C, etc. I even plan our menu around "food pairing" for optimal absorption of nutrients. He lost 7 lbs in the month previous to learning he'd relapsed and I couldn't figure out why when I was feeding him enough for 3 men!
Prayers from family and friends - that is the last and most important thing on the list for extended remission!
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LauraB - Name: LauraB
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: Dec 2014
- Age at diagnosis: 72
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