[Jackie]

Recently diagnosed

by Jackie on Sun Sep 02, 2012 1:23 pm

I am new here, with a recent diagnosis. It all started in April this year. Pneumonia, followed by a ruptured ear drum and severe back pain. One trip to the doctors office with the right md, and she figured out the multiple myeloma ASAP...in between all that time they figured out the 2 collapsed vertebra. Khyphoplasty did wonders, till use a walker but I am walking.
According to the md my igg level was 11,000 when I started Velcade , last check I was at 3,100.
I also got c diff when I was in the hospital, that's gone finally
According to my doc, he thinks I can go to Stanford in October for stem cell transplant.
I really like coming to this site it is full of information. I'm not that great at writing

[Nancy Shamanna]

Re: Recently diagnosed

by Nancy Shamanna on Sun Sep 02, 2012 10:40 pm

Thanks for joining the Myeloma Beacon forums, Jackie! it is such a great resource for all of us who want to learn more about multiple myeloma, and also to interact with others sharing some of the same problems. Best wishes to you too!

[Jackie]

Re: Recently diagnosed

by Jackie on Tue Sep 04, 2012 8:13 pm

I just got some information back on my numbers, I read on hear it says to get to know your disease
So I asked today when I went in.
My Igg beginning level was 10,900 and it is at 3100 now
My m protein was 9.8 now 2.5
And my
Kappa light chain was 205.00 and now 14.3
Lambda LCD. Was 6.1. Now 1.30
Kapp/Lamb. Was 33.61. Now 11.00
I have the numer 13 deletion??
It all looks good to me they are coming down. Is there anything else I should really pay attention to? I also pay attention to my CBC numbers, and kidney numbers.