Anyone have follow-ups since the last comment?
I was diagnosed with smoldering MGUS in mid 2013. By Jan 2014 it became active and I did six months of chemo, then a stem cell harvest (no transplant). I tried Revlimid as a maintenance therapy but could not tolerate it. Since then, no chemo. I was in full remission for a while, now characterized as active but indolent (i.e., progressing slowly, elevated light chains,, no M-spike yet).
In November 2014 I had the first of a series of very itchy rashes, this one mainly on my back. After ointments didn't help my PCP gave me a week of prednisone which cleared the rash, but it has come back every few months since, on my back and other places. My dermatologist (at Dana Farber) gave me clobetasol which helped but did not fully cure, so I've taken courses of prednisone 20 mg 5 days a couple of times successfully. The last time – recently – however, the itch went away but the rash did not, and after a week or so of comfort the itch started up again, though not as badly.
My dermatologist thinks it''s contact dermatitis and wants me to get a sophisticated patch test, but there's a six-month waiting list. She advised me to switch to white cotton underwear.
My PCP thinks the rash is systemic, not contact, and possibly related to the multiple myeloma. Frankly they are both brilliant, but I think my PCP is right, mainly because the white cotton has not helped and because the rash has been on parts of my arms and legs not in contact with clothing (short pants in this weather).
We may all have different causes for our rash. Any comments? And good luck!
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