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protocol not working

by alpass on Wed Oct 24, 2012 9:21 am

hi
i had 2 asct`s,Revlimid when numbers started going up.Revlimid stopped added Velcade and cytoxin.numbers keep going up.any ideas?
thanks and God Bless
Al

alpass

Re: protocol not working

by alpass on Wed Oct 24, 2012 4:26 pm

i am meeting with Dr. tomorrow, bringing up allo transplant

alpass

Re: protocol not working

by LibbyC on Wed Oct 24, 2012 7:16 pm

Hi Alpas,

I had a chemorefractory myeloma and was in that awful place when the options for controlling the disease by chemo had run out. (There were maybe 2 trial drugs available but because I had had renal failure I was excluded from them). I had an allo in april 2011 and am now in CR and I never reached CR prior to the allo (my numbers just kept on going up).

All the best.

LibbyC
Name: LibbyC
Who do you know with myeloma?: myself
When were you/they diagnosed?: 2009
Age at diagnosis: 43

Re: protocol not working

by alpass on Thu Oct 25, 2012 11:04 am

i have a call into Dr. Fowler at NIH,they are doing allo clinical trials
thanks
Al

alpass

Re: protocol not working

by alpass on Sat Oct 27, 2012 7:37 am

Dr. Fowler left a message that the trial is closed.this i think would have been good for me

alpass


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