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Re: Poly-MVA - has anyone tried this?
The lack of an aspirin was not the cause of the headache!
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Sheila
Re: Poly-MVA - has anyone tried this?
Hello,
This topic has generated a lot of interest and I feel compelled to comment.
In general when a patient asks me about complementary and alternative medicine (CAM) I tell them that I would prefer that it not be used during active treatment for cancer because the effects of CAM (positive or negative) in combination with traditional medicine are unknown.
The Americian Society of Oncology ( I am a member) has information about CAM on its website at this link that many of the Myeloma Beacon's readers may find useful.
Like many physicians I am not personally opposed to CAM and I strive to encourage and advise my patients regarding this avenue when they inquire. I do not recommend CAM however.
There are 5 articles published in the entire world's scientific literature (PubMed search) on this product. Three of the five articles reported on the use of POLY-MVA in rats, gerbils and mice respectively. None of them were looking at its effect in cancer. Therefore, we know very little scientifically or medically about POLY-MVA. Perhaps the product should be researched using standard scientific methodology, but so far it has not been studied. I note that the POLY-MVA website is a dot.com and therefore the company is "for profit".
Multiple myeloma is a terrible disease and reaching out for help wherever it seems to be makes perfect sense. One must always be extremely cautious however when results are claimed that no one else can reproduce or that cannot be substantiated ... a la Bernie Madoff.
I would like to thank the Beacon's readers for allowing me to participate in this active discussion.
This topic has generated a lot of interest and I feel compelled to comment.
In general when a patient asks me about complementary and alternative medicine (CAM) I tell them that I would prefer that it not be used during active treatment for cancer because the effects of CAM (positive or negative) in combination with traditional medicine are unknown.
The Americian Society of Oncology ( I am a member) has information about CAM on its website at this link that many of the Myeloma Beacon's readers may find useful.
Like many physicians I am not personally opposed to CAM and I strive to encourage and advise my patients regarding this avenue when they inquire. I do not recommend CAM however.
There are 5 articles published in the entire world's scientific literature (PubMed search) on this product. Three of the five articles reported on the use of POLY-MVA in rats, gerbils and mice respectively. None of them were looking at its effect in cancer. Therefore, we know very little scientifically or medically about POLY-MVA. Perhaps the product should be researched using standard scientific methodology, but so far it has not been studied. I note that the POLY-MVA website is a dot.com and therefore the company is "for profit".
Multiple myeloma is a terrible disease and reaching out for help wherever it seems to be makes perfect sense. One must always be extremely cautious however when results are claimed that no one else can reproduce or that cannot be substantiated ... a la Bernie Madoff.
I would like to thank the Beacon's readers for allowing me to participate in this active discussion.
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Dr. Edward Libby - Name: Edward Libby, M.D.
Beacon Medical Advisor
Re: Poly-MVA - has anyone tried this?
Interesting to run across this forum as my family has now had over 8 different cancers in the last 15 years, let alone the friends and their families that have had cancer and all that comes with the disease and the treatments. I am a supporter of integrative medicine and have come to the conclusion over the years, that when you support the body to do what it does best, then Quality of Life( QOL) rises quickly and typically survival time does as well.
The difficulty with most cancers is that by the time the diagnosis comes it is later stage and/or metastatic and that is tough for the body to deal with, let alone most of the treatments that are only 20-50% effective at best, which means if you land on the other side of the percentage scale then you have just received a poison and now your body has to deal with that as well as the disease, and it is ultimately a guess. What a vicious cycle and, for anyone who has seen a healthy person waste away and then have to be on morphine for their final days, so out of it they don't know what is going on and in such pain it is life changing and you have to ask yourself, is this really the best modern medicine has to offer after 40 years of "The War" on cancer.
It breaks my heart and common sense has to kick in and lets realize we are approaching this "cancer / degenerative disease" quite possibly the wrong way. With my last experience with cancer being non small cell lung cancer and now a friend with multiple myeloma, everyone should go visit the conventional treatment facilities and then go and visit many of the integrative clinics and boy what a difference in approach / compassion / honesty and the patients live longer and do better so their is a big disconnect in my mind that I am seeing.
Now I am not researcher by any means, however I have experienced and seen things like IV vitamin C, Meyers cocktails, poly MVA (oral and IV), glutathione, low dose chemo and host of others improve, change and increase peoples lives, and this goes way beyond any placebo, smoke and mirrors or just marketing hype. There are integrative oncologists who have been doing outcome based studies and have used poly MVA for over 10 years. I have spoken with some and I didn't find one that was unhappy with their treatments and many had conventional or were doing both, so it was easy to see the difference and why they uses various approaches.
The difficulty is there is not research money behind them as they typically can't be patented so where is the reason to research vitamin C or something similar. We could talk hours on published research, and most doctors are still "Practicing Medicine", on us and how easily it becomes a revolving door of prescriptions. The second you introduce another drug (most cancer patients are on multiple drugs) any research goes right out the window and then it comes down to trial and error and experience and outcomes.
So lets look at outcomes as our bar and how people are doing in both QOL and longevity and when i did that I was sadly surprised that pharmaceutical medicine has missed the mark when it comes to degenerative disease. The # of people that are hurt in our current medical system is not a small # to be dismissed and our approach is flawed and when you look at the rise of prescriptions: http://www.cdc.gov/nchs/data/databriefs/db42.htm
I honestly hope we can come up with a better model for helping people with this dreaded disease and so many other conditions, we are not likely going to find it in another prescription, that much is certain in today's medical model.
Thanks for reading and I sincerely hope we can come together in a more productive way to help people.
The difficulty with most cancers is that by the time the diagnosis comes it is later stage and/or metastatic and that is tough for the body to deal with, let alone most of the treatments that are only 20-50% effective at best, which means if you land on the other side of the percentage scale then you have just received a poison and now your body has to deal with that as well as the disease, and it is ultimately a guess. What a vicious cycle and, for anyone who has seen a healthy person waste away and then have to be on morphine for their final days, so out of it they don't know what is going on and in such pain it is life changing and you have to ask yourself, is this really the best modern medicine has to offer after 40 years of "The War" on cancer.
It breaks my heart and common sense has to kick in and lets realize we are approaching this "cancer / degenerative disease" quite possibly the wrong way. With my last experience with cancer being non small cell lung cancer and now a friend with multiple myeloma, everyone should go visit the conventional treatment facilities and then go and visit many of the integrative clinics and boy what a difference in approach / compassion / honesty and the patients live longer and do better so their is a big disconnect in my mind that I am seeing.
Now I am not researcher by any means, however I have experienced and seen things like IV vitamin C, Meyers cocktails, poly MVA (oral and IV), glutathione, low dose chemo and host of others improve, change and increase peoples lives, and this goes way beyond any placebo, smoke and mirrors or just marketing hype. There are integrative oncologists who have been doing outcome based studies and have used poly MVA for over 10 years. I have spoken with some and I didn't find one that was unhappy with their treatments and many had conventional or were doing both, so it was easy to see the difference and why they uses various approaches.
The difficulty is there is not research money behind them as they typically can't be patented so where is the reason to research vitamin C or something similar. We could talk hours on published research, and most doctors are still "Practicing Medicine", on us and how easily it becomes a revolving door of prescriptions. The second you introduce another drug (most cancer patients are on multiple drugs) any research goes right out the window and then it comes down to trial and error and experience and outcomes.
So lets look at outcomes as our bar and how people are doing in both QOL and longevity and when i did that I was sadly surprised that pharmaceutical medicine has missed the mark when it comes to degenerative disease. The # of people that are hurt in our current medical system is not a small # to be dismissed and our approach is flawed and when you look at the rise of prescriptions: http://www.cdc.gov/nchs/data/databriefs/db42.htm
I honestly hope we can come up with a better model for helping people with this dreaded disease and so many other conditions, we are not likely going to find it in another prescription, that much is certain in today's medical model.
Thanks for reading and I sincerely hope we can come together in a more productive way to help people.
Re: Poly-MVA - has anyone tried this?
Although the original question was asked years ago, since this forum is still active, I wanted to respond. I am using Poly MVA for pets (which is the same formula). My cat has been on it for 3.5 months and has reacted very well to it. He is also on chemotherapy. I wouldn't think of using it instead of, but as an addition to, prescribed meds.
I did a lot of online research and couldn't find any sound negative comments other than this is not a "cure". It's not a CURE, but, used as a homeopathic addition to proven medicine, it helps the body tolerate the chemo, improves cell function and overall health. My vet said about using Poly MVA; "it couldn't hurt," but had never heard of it (he was skeptical).
Would love to hear from others that have tried it and also from the original poster.
I did a lot of online research and couldn't find any sound negative comments other than this is not a "cure". It's not a CURE, but, used as a homeopathic addition to proven medicine, it helps the body tolerate the chemo, improves cell function and overall health. My vet said about using Poly MVA; "it couldn't hurt," but had never heard of it (he was skeptical).
Would love to hear from others that have tried it and also from the original poster.
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Karen - Homeopathic
Re: Poly-MVA - has anyone tried this?
I would like to reopen this discussion as I am seriously thinking of asking my husband to consider taking the full dose of 8 teaspoons a day (with CoQ10) for 2 months before his next 3-month blood test. He has a blood test this week and is smoldering myeloma as of his original diagnosis in November 2014.
My husband doesn't even like taking gummy vitamins, so it will be hard to sell him on this. Each month will be $1,000 of the product (for each of the 2 months). I have listened to Youtube testimonies and pursued tracking down some of the people who gave those testimonies (10 years ago). I am going to try to contact those people, if I can.
I know odd alternative treatments (at times) work as we have a personal friend that had stage IV breast cancer and was given months to live. She was cured 30 years ago by taking IV injections of CHML. That product is only available through 9-hour IVs for 26 days (for 3 months) at a hospital in New York. And CHML did not cure the 2 myeloma patients that tried it (as far as I know).
We both work full time and have 11 year old twins, so this option won't work for us, especially without proof of myeloma responding to it.
Does anyone here have any experience with Poly-MVA ?
My husband doesn't even like taking gummy vitamins, so it will be hard to sell him on this. Each month will be $1,000 of the product (for each of the 2 months). I have listened to Youtube testimonies and pursued tracking down some of the people who gave those testimonies (10 years ago). I am going to try to contact those people, if I can.
I know odd alternative treatments (at times) work as we have a personal friend that had stage IV breast cancer and was given months to live. She was cured 30 years ago by taking IV injections of CHML. That product is only available through 9-hour IVs for 26 days (for 3 months) at a hospital in New York. And CHML did not cure the 2 myeloma patients that tried it (as far as I know).
We both work full time and have 11 year old twins, so this option won't work for us, especially without proof of myeloma responding to it.
Does anyone here have any experience with Poly-MVA ?
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brandyjoco - Name: brandyjoco
- Who do you know with myeloma?: husband
- When were you/they diagnosed?: September 2015
- Age at diagnosis: 54
16 posts
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