Hello Everyone. I received my post transplant vaccines which is the protocol in the area I live in. In my case I was about 13 months post autologous. I had 5 vaccines about 1 week ago. Since that time I have experience a low grade fever ranging from 99.5 to 100.5. The fever responds to acetaminophen but is pesky and keeps coming back. My doc said this is normal and not to worry about it. I have no other symptoms. Just the fever and some mild fatigue.
Has anyone else experienced this? What was the duration of the fever? Did you have other symptoms?
Thanks.
Forums
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indy mike - Name: Mike Mathias
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: Jan 2011
- Age at diagnosis: 51
Re: Post Transplant Vaccines
Hi Indy Mike, When I had my first set of (killed) vaccines, I also had a low grade fever. I took Tylenol, and it subsided in a day or two. BTW, I just had my last booster for MMR this week...am now finishing up having the live vaccines, taken two years after transplant. The public health nurse warned me that I may have a mild measles type rash in a few days! I have just written a column on 'vaccines' and it would be for this month.
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Post Transplant Vaccines
I was told that I could get the flu vaccine when it comes available again in my area. But I could not take ANY vaccines - live or dead- for 12 months post SCT. I guess I will get my first ones around September. My new birthday is September 26. But my biggest concern is Shingles. My mom had them as did my Nana. So I wonder if I will have them or because of the Mephlan, will I be lucky and miss out on the Shingles. Any experience with these devils?
Thanks for the great website. I am currently on maintenance with Revlimid and not doing too well. At 5 mg. its like the Revlimid had nothing to "fight" so it is beating up on me since I am currently in remission.
Thanks for the great website. I am currently on maintenance with Revlimid and not doing too well. At 5 mg. its like the Revlimid had nothing to "fight" so it is beating up on me since I am currently in remission.
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mdegenkolb
Re: Post Transplant Vaccines
fHi Mdegenkolb, I also had to wait a year before the 'transplant unit' would clear me to take the 'killed' vaccines, and then two years for the 'live' vaccines. But right after my ASCT, I was put onto an antibiotic and antiviral regimen to combat infectious bacterial infections and viral infections such as shingles. I took those for at least a year.
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Post Transplant Vaccines
My oncologist doesn't feel that it's necessary to repeat the vaccines so I haven't had any other than annual flu vaccine. He says "no" to any live vaccines. I had shingles a year ago, 15 months after my transplant. Although I didn't really have any pain, I was sick and am still dealing with the after effects. I had them on my face and in one of my eyes. I'm still taking Acyclovir daily and a steroid drop in my eye for lesions that still act up some.
Nancy in Phila
Nancy in Phila
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NStewart - Name: Nancy Stewart
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 3/08
- Age at diagnosis: 60
Re: Post Transplant Vaccines
Hi Nancy, I took Acyclovir for two years, until I could get the varicella vaccine. It works against chickenpox, which is from the same virus as shingles (child vs. adult infection). I had to be cleared to take the vaccines by the transplant clinic, to make sure I was no longer immune compromised, in the case of the 'live' vaccines. I was no longer on chemotherapy at the time of the live vaccines, and was pretty much back to normal, health wise! I realize it might not work for everyone, though.
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Post Transplant Vaccines
Hi everyone,
This is vaccine related, but a little off topic. I hope you don't mind. I have had 2 myeloma drs. The first one was pro vaccine after transplant. The second one is poo pooing vaccines after transplant. I don't enjoy the thought of doing vaccinations. I loved my immune system before this disease. But I have never heard of not vaccinating after transplant. Any guidance and thoughts would be appreciated. BTW I was diagnosed with lambda light chain myeloma in .Dec. 09 and Amyoidosis in Feb 10. My myeloma causes the Amyloid. I had my first SCT in July 10 and a second in April 11. I have remission so far. My thoughts are with all of you.
Deb
This is vaccine related, but a little off topic. I hope you don't mind. I have had 2 myeloma drs. The first one was pro vaccine after transplant. The second one is poo pooing vaccines after transplant. I don't enjoy the thought of doing vaccinations. I loved my immune system before this disease. But I have never heard of not vaccinating after transplant. Any guidance and thoughts would be appreciated. BTW I was diagnosed with lambda light chain myeloma in .Dec. 09 and Amyoidosis in Feb 10. My myeloma causes the Amyloid. I had my first SCT in July 10 and a second in April 11. I have remission so far. My thoughts are with all of you.
Deb
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Deb
Re: Post Transplant Vaccines
Hi Deb, I can only speak from personal experience but post trans vaccines seem to be the norm in my neck of the woods. Usually done 12 months following the transplant with a second round 14 months out. I received the HIB, Hep B, Pneumoccal, Polio and the Diptheria,Perutssis Tetanus. I had some arm soreness for two to three days and a low grade fever which I posted about a couple of weeks back.
I do have a question to throw out to the Forum. After experiening these low grade fevers for two weeks I went to my PCP at my onc's recommendation. A CBC was run and urine was drawn. Urine was normal and CBC all within normal range. However a test that was new to me, the Sed was done on my blood and revealed my Sed to be high. For males over 50 20 mg is at the top of the normal range. Mine was 46. My doctor wants to rerun the test in two weeks.
I looked this up on the internet and it said while the Sed is not a real accurate test and does not confirm diagnosis it can be an indicator to run further tests for such things as autoimmune disoreders, arthritis , tuberculosis and interestingly lymphoma and multiple myeloma.
I don't remember this test from all of my past CBCs. Would most multiple myeloma patients have an elevated Sed? Would this be true if in or out of remission?
My fever seems to have finally stabilized and it could be totally unrelated to any of the above but I am curious and a little concerned.
I do have a question to throw out to the Forum. After experiening these low grade fevers for two weeks I went to my PCP at my onc's recommendation. A CBC was run and urine was drawn. Urine was normal and CBC all within normal range. However a test that was new to me, the Sed was done on my blood and revealed my Sed to be high. For males over 50 20 mg is at the top of the normal range. Mine was 46. My doctor wants to rerun the test in two weeks.
I looked this up on the internet and it said while the Sed is not a real accurate test and does not confirm diagnosis it can be an indicator to run further tests for such things as autoimmune disoreders, arthritis , tuberculosis and interestingly lymphoma and multiple myeloma.
I don't remember this test from all of my past CBCs. Would most multiple myeloma patients have an elevated Sed? Would this be true if in or out of remission?
My fever seems to have finally stabilized and it could be totally unrelated to any of the above but I am curious and a little concerned.
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indy mike - Name: Mike Mathias
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: Jan 2011
- Age at diagnosis: 51
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