[facetious]

Re: post stemcell transplant

by facetious on Sat Feb 18, 2012 7:02 pm

First post on the Myeloma Beacon.
I had an autologous transplant in September - day 2, Chemo; day 3, rest; day 4, 50% of transplant and day 5, the reaming 50% of transplant.

The doctor originally said that I would probably stay in Hospital 3-4 weeks. I was out on day 17. Given complete remission in Jan 2012 and not to go back for a check-up until April 11th.

Feeling fine, no problem in walking 3-4 miles but I use a walking stick as a safety measure in case I trip.

My only problem now (apart from back ache) is peripheral neuropathy which became very apparent after the transplant and in spit of the medication for it, it doesn't seem to be getting better.

Probably should mention - Although Irish, I was living in Argentina and all treatment there. I had no family there and my friends all lived over 300 kms (200 miles) away from the hospital that treated me initially. The hospital where I had the transplant was further 700 kms (450 miles) away, so no helpers/careers. To be quite honest, while in hospital, I didn't want to see friends anyway - I just wanted peace and quiet. Days that I was in "good form" were observed by my watching TV or using my laptop, the other days I just lay quietly or did some walking around the room and a few gentle exercises!

[roteye]

Re: post stemcell transplant

by roteye on Wed Jun 20, 2012 9:07 pm

I just turned 64 and very apprehensive about this procedure and how it's going to make me feel. did u lose all of your hair? Do you have any regrets? i will be making my decision on /friday with my family and doctor.

roteye

[Dr. Peter Voorhees]

Re: post stemcell transplant

by Dr. Peter Voorhees on Thu Jun 21, 2012 8:09 am

Dear Rodney,

Great question. The incredible people that have responded to your post provide you with a nice landscape of the process. The most difficult side effects of treatment (nausea/vomiting, diarrhea, mouth sores, low blood counts) recover quite quickly in the majority of cases. Things tasting right/appetite are a bit slower to recover but follow suit shortly thereafter. The energy level is the last to come back and the rapidity with which it improves depends on what shape you are in going into the procedure. If you are struggling with problems related to myeloma, myeloma therapy, or other medical conditions going into the transplant, the harder it is.

Best of luck to you and let us know how it goes. We are all cheering you on!

Pete V.

[greg matthews]

Re: post stemcell transplant

by greg matthews on Sat Jun 23, 2012 3:12 pm

rodney martin wrote:
> Trying to find ot what to expect after transplant. talk to people about
> thier experiences after procedure. hard to get straight answers from
> doctors.

Rodney

I am 13 months post stem cell and in remission still, I am not on any meds at all. What answers are you looking for. I did post earlier on this. How are you doing?