The Myeloma Beacon

Independent, up-to-date news and information for the multiple myeloma community.
Home page Deutsche Artikel Artículos Españoles

Forums

Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Can I keep my portacath for my stem cell transplant?

by dianaiad on Tue Aug 15, 2017 2:40 pm

I am told I will need a 'central line' for my upcoming stem cell transplant (my second). Last time it wasn't an issue; they told me to show up, my sister hauled me down there, they inserted the central line, and she drove me home. We got home just too late to prevent her from getting a parking ticket for having her car on the street on street cleaning day.

I did get her out of paying the fine, though. Something about hobbling up to the officer with those lines sticking out of the top of my shirt, and let's face it, I did look like four miles of very bad road. Anyway, the officer took pity and crossed out the 'fine' part.

Hey, you have to get your life victories wherever you find them, yes?

OK, CyBorD induction therapy doesn't require infusions; the "C" (cyclophosphamide) and "D" (dexamethasone) were pills, and the Velcade was given by injection, not IV. So there was nothing in the way of a central line.

This time, however, there is. I have a portacath. So when I go in to get the central line (and my oncologist made it clear that it was a 'central line,' not a 'Hickman' - aren't they the same thing?), I will already have a portacath. I've asked several people, and have been given several answers.

Some say no, they will have to remove the port to insert the central line. Some say yes, you can have both; the nurses can then use the port for some things and the central line for others.

I don't suppose it matters all that much in the long run, but I'll admit to an itchy curiosity bump:

Does the port come out in order for the central line to go in? I'll miss my port. It's not only a lot more convenient, and does save me something like $120 a month in lab co-pays. Given that I will probably have to do a lot more blood tests, etc., when I get home, keeping the port would be nice.

Not a deal breaker, of course, but nice.

So.

Can anybody give me the actual, factual, right answer to this one? ;)

dianaiad
Who do you know with myeloma?: Me
When were you/they diagnosed?: Officially...March 2013
Age at diagnosis: 63

Re: Can I keep my portacath for my stem cell transplant?

by kshornb on Wed Aug 16, 2017 12:40 pm

Dianaiad:

I had both a central line and a port during my stem cell transplant. The port was put in (right side) for induction therapy (I still have it, 2 years later). The central line was put in the left side for the stem cell transplant.

It was my understanding that the port does not allow enough stems cells through, that's why you need the central line. They also used the central line for medications, which was wonderful, because they were faster acting that way, and also for drawing blood for labs. Matter of fact, I don't remember them using the port for anything during the stem cell transplant.

I still use my port for blood draws and Zometa infusions.

Kathleen

kshornb
Name: kshornber
Who do you know with myeloma?: self
When were you/they diagnosed?: July 2015
Age at diagnosis: 52

Re: Can I keep my portacath for my stem cell transplant?

by dianaiad on Wed Aug 16, 2017 1:51 pm

Oh, that's nice to hear!

I really would miss my 'port. I've had to do infusions without one before (I had cellulitis several years ago; my oncologist seems to think that I've been dealing with multiple myeloma for years, and that's why I had so many weird infections so I know what having to deal with picc lines and new 'sticks' when they are trying to find a good vein is like).

Blood draws are no problem, at least for now. I don't mind them. I do, however, have to pay some pretty hefty co-pays for lab work. I know, that's probably a dumb reason to want to keep the port, but when one is on a fixed income and everything else is getting more expensive, $30 every time you have to have lab work adds up really fast.

I'm just grateful I have insurance to take care of the rest of it. Mostly.

Thanks for your response!

dianaiad
Who do you know with myeloma?: Me
When were you/they diagnosed?: Officially...March 2013
Age at diagnosis: 63

Re: Can I keep my portacath for my stem cell transplant?

by Margie C on Sun Aug 20, 2017 9:54 pm

I had both. I had a lumina port for my stem cell transplant, and they kept my other port in place. I did tandem transplants, so they pulled out the port when I went home and did a Hickman for the second stem cell transplant. They stated my port was not strong enough for my hospital experience

Best wishes for your treatment.

Margie C


Return to Treatments & Side Effects