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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Port for VCD/CyBorD?

by torimooney on Sat Aug 03, 2013 4:32 pm

I've had a port and recommend it to all that are difficult draws. No problems and much easier than 4-5 attempts to get a line started using a peripheral vein. I still occasionally will get blood drawn by using a peripheral vein if I'm not getting it done by the chemo nurses and it is a major hassle as compared with the ease of the port. There is no contraindications to getting a port wet after the first 10 days. The procedure of installing the port was a breeze.

torimooney
Name: tori
Who do you know with myeloma?: myself
When were you/they diagnosed?: apr 2012
Age at diagnosis: 64

Re: Port for VCD/CyBorD?

by Dr. Ken Shain on Sun Aug 04, 2013 10:30 am

It is not necessary to get a port or PICC for IV cytoxan. I generally recommend one or the other- Ports are better in my opnion in terms of infection risks. However, there is a risk of clot as you stated. You can always see how the first cycle goes and get one later. Again, my recommendation is generaly to get one when getting IV cytoxan. It will be taken out after therapy is completed. This is also up to the comfort and practices of your oncologist. His/Her opinion should be considered in this setting.

Further, oral cyclophosphamide weekly is also a option in the setting for VCD/CyBorD.

Please wish your mother and your family the best of luck.

Dr. Ken Shain
Name: Ken Shain, M.D., Ph.D.
Beacon Medical Advisor

Re: Port for VCD/CyBorD?

by Kevin J on Sun Aug 04, 2013 11:33 am

I was on treatment for two years, which included Carfilzomib by IV three out of four weeks for the first eight months, then every other week thereafter, plus Zometa once a month. The nurses had a very difficult time starting IVs, usually having to make 2 or 3 attempts to get a good draw. My arms were getting chewed up and sore, so I opted for the port after about three months. It ended up being a good decision for me, and I had no issues with the port for the remaining 21 months. However, the port was a discomfort at times, obviously didn't look so great, and left a significant scar once removed. I think it's a good option for long term treatment, particularly if you have difficulty getting good access with an IV, but if I didn't have the issue with the IVs, I probably wouldn't want to do it again.

Kevin J
Name: Kevin J
Who do you know with myeloma?: myself
When were you/they diagnosed?: Jan 2011
Age at diagnosis: 52

Re: Port for VCD/CyBorD?

by TobyBradshaw on Sun Aug 04, 2013 1:55 pm

Thanks again for all of your advice and experience -- much appreciated. My mom will get a PET scan after her second cycle to evaluate the effectiveness of the treatment. If further cycles of VCD are recommended, she'll probably opt for the port.

TobyBradshaw
Who do you know with myeloma?: Mom
When were you/they diagnosed?: July 2013, 6 extramedullary plasmacytoma
Age at diagnosis: 77

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