[Edmart]

Pomalyst and hair loss

by Edmart on Tue Jul 02, 2013 6:09 pm

My wife is on 3mg Pomalyst for 21 days and 12mg Dex weekly during that time. She has been losing a lot of hair. Can anything be done about this? Thanks for reading and responding. Edward

[Dr. Jason Valent]

Re: pomalyst and hair loss

by Dr. Jason Valent on Wed Jul 03, 2013 8:25 am

I have not personally had patients complain of this from pomalyst. However, this is a very new drug and hair loss may be possible. The other consideration is if the hair loss is from prior treatments. Did she ever receive Cytoxan (cyclophosphamide) or melphalan?

[Edmart]

Re: pomalyst and hair loss

by Edmart on Wed Jul 03, 2013 1:07 pm

Previously she was on Revlimid, then Velcade then bendamustine. She had some hair loss with Velcade but nothing like with Pomalyst.

[redtkd]

Re: pomalyst and hair loss

by redtkd on Thu Jul 04, 2013 7:48 am

My husband has been on Pomalyst 4 mg, Dex, and Velcade SubQ for three months. He has experienced no hair loss at all. However, there has been a change in the texture of his hair. And, unfortunately, this drug combination is not working. We are going to give it one more month to try to kick in - then we will have to change to something else.

[MikeJBaron]

Re: Pomalyst and hair loss

by MikeJBaron on Sun Jan 05, 2014 8:52 am

I believe "hair loss" is not listed as a side effect in Celgene's handbook on Pomalyst.

[JimNY]

Re: Pomalyst and hair loss

by JimNY on Sun Jan 05, 2014 2:00 pm

In case anyone is interested, this is the official FDA-approved prescribing information ("label", as it's sometimes called) for Pomalyst:

http://www.accessdata.fda.gov/drugsatfda_docs/label/2013/204026lbl.pdf

The side effects seen in the clinical trials that were reviewed when the drug was approved are listed in tables 2, 3, and 4 of the document.

Like Mike, I'm not seeing any mention of hair loss or "alopecia", as hair loss is sometimes called in medical circles.

[Annemarie]

Re: Pomalyst and hair loss

by Annemarie on Thu May 18, 2017 4:50 pm

I have been on 2 mg Pomalyst,10 mg Decadron, and Kyprolis since late December 2016 after relapsing. I know one of them is causing my hair to thin out. It started 2 months ago. Not in clumps, but a gradual thinning.

[dianaiad]

Re: Pomalyst and hair loss

by dianaiad on Thu Jul 20, 2017 9:49 am

I have been taking Pomalyst for a week.

I've had a few side effects from it that drive me nuts, but for which I have also found remedies. One thing I have noticed is that (and it's too early to tell, I know) my hair seems to actually be thicker.

It's starting to break the hair clips again.

Darn.

Getting my good hair back a month before I lose it all? How fair is that?