My husband fears that his days of playing golf are over because of the loss of upper body strength. Is there anyone here who went back to the game during maintenance or any other point in treatment?
I'll add that he has a great attitude and spirit about his multiple myeloma and will find alternative activities if golf doesn't work out.
AnnieB
Forums
7 posts
• Page 1 of 1
Re: Golf after multiple myeloma treatment?
I do not play golf but at my worst during my SCT walking four laps around the floor of the hospital wing I was on would wipe me out for the day. I was all skin and bones having lost 50lbs. Three months later I was biking 40 miles and skiing, 6 months later I biked 86 miles with 4000 feet of climbing. Last summer I hiked up to the top of Half Dome.
Hopefully if your husband does not have any major skeletal damage and he gets through his induction therapy and into remission his strength will come back. I was surprised how quickly I was able to recover, but then I am a quite a bit younger. Try to keep some minimal level of exercise no matter how tired, even if it is just waking.
Hopefully if your husband does not have any major skeletal damage and he gets through his induction therapy and into remission his strength will come back. I was surprised how quickly I was able to recover, but then I am a quite a bit younger. Try to keep some minimal level of exercise no matter how tired, even if it is just waking.
-
Eric Hofacket - Name: Eric H
- When were you/they diagnosed?: 01 April 2011
- Age at diagnosis: 44
Re: Golf after multiple myeloma treatment?
Thank you, Eric, for your reply. You are a great example of bouncing back from this devastating disease. My husband has lost so much muscle mass (he has a long and lean physique naturally but worked on upper body strength) and has numerous lytic lesions in his chest, shoulders, pelvic region, and femurs. He would like to work with light weights and strengthening exercises but his Doctor says no. Maybe he will be able to play short courses. It was golf that caused him so much pain months ago.
He continues to walk on the treadmill.
We are just beginning to see how one's lifestyle changes with this wretched disease.
He continues to walk on the treadmill.
We are just beginning to see how one's lifestyle changes with this wretched disease.
Re: Golf after multiple myeloma treatment?
After I had my ASCT, a physiotherapist came into the hospital to give me some strengthening and stretching exercises to do. I was also walking quite a bit. The exercises involved using a stretchy 'thera band'. Since I was given a light weight one, the idea was just to do gentle exercises. Now I am much stronger, and can do some of what I could before the bone damage occurred, but at the time i had to be very careful not to injure myself further.
Maybe your husband's doctor could refer him for some physiotherapy, that would be appropriate for him now.
Maybe your husband's doctor could refer him for some physiotherapy, that would be appropriate for him now.
-
Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Golf after multiple myeloma treatment?
Walking, stationary bicycle, and water aerobics is what I was told to do for low impact exercises, up until my asct. Then they will decide from there on their recommendations
Re: Golf after multiple myeloma treatment?
I still golf.
-
coop223 - Name: derek cooper
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: November 2011
- Age at diagnosis: 57
Re: Golf after multiple myeloma treatment?
Hi Annie,
After a year of daily reading the Beacon, I thought it was time to give back! I am still learning about this disease but I remember being in your very same spot not too long ago.
Though my husband doesn't play golf he is an avid surfer and was the picture of health until increasing back pain led him to diagnosis. He was hospitalized with kidney failure and labeled as stage 3 in January of last year. He had a goal to be surfing again by May and he did it! He started with walking up and down our street in a walker, moved on to a cane and progressed from there. He worked with a physical therapist to get back his upper body strength which is needed for paddling out and popping up on the board.
It looks like your husband was just diagnosed last month. Both the chemo and the bone strengtheners will help, indirectly, with the pain. Phil also had kyphoplasty which alleviated the pain from the compression fractures, though it sounds as if your husband's spine is not involved.
BTW, My husband also has not chosen to have a SCT. This is a process and both our guys may choose down the road to go ahead with one but there are plenty of folks who agree with treatment only.
As I write this, Phil is running the stairs at the harbor and many on this site are cyclists, swimmers, etc. Your husband sounds like he is motivated so may this give you both much hope.
Blessings,
Susan
After a year of daily reading the Beacon, I thought it was time to give back! I am still learning about this disease but I remember being in your very same spot not too long ago.
Though my husband doesn't play golf he is an avid surfer and was the picture of health until increasing back pain led him to diagnosis. He was hospitalized with kidney failure and labeled as stage 3 in January of last year. He had a goal to be surfing again by May and he did it! He started with walking up and down our street in a walker, moved on to a cane and progressed from there. He worked with a physical therapist to get back his upper body strength which is needed for paddling out and popping up on the board.
It looks like your husband was just diagnosed last month. Both the chemo and the bone strengtheners will help, indirectly, with the pain. Phil also had kyphoplasty which alleviated the pain from the compression fractures, though it sounds as if your husband's spine is not involved.
BTW, My husband also has not chosen to have a SCT. This is a process and both our guys may choose down the road to go ahead with one but there are plenty of folks who agree with treatment only.
As I write this, Phil is running the stairs at the harbor and many on this site are cyclists, swimmers, etc. Your husband sounds like he is motivated so may this give you both much hope.
Blessings,
Susan
-
Susang - Name: Susang
- Who do you know with myeloma?: Phil/Husband
- When were you/they diagnosed?: Jan 5 2013
- Age at diagnosis: 60
7 posts
• Page 1 of 1
Return to Treatments & Side Effects