I am new to the forum and looking for some support from people with the same type of illness as me.
I was just recently diagnosed with plasmablastic multiple myeloma in April. So far my journey has been a bit scary. I have generally been healthy my whole life and all of a sudden it's like time just stops when I am told I have this rare cancer and it's is incurable but treatable. Its a bit of a shock to my life and my family members.
So far, I have been responding fairly well to CyBorD chemo (cyclophosphamide, Velcade, and dex). One of the main issues I been dealing with is bone pain, especially in the spine and legs. But I been trucking along now, moving into my 4th month of chemo. Sometime soon I should be getting a stem cell transplant. I was told I am to receive a "full transplant". Because of my age, I was told my body can tolerate the effects of the heavy chemo followed by the stem cell transplant. So far, I am still waiting for my donor. My siblings have been tested ... just anxiously waiting for results.
So I am wondering is there anyone out there who has gone through or is going through the same thing . I am moving into the next stage of treatment and I am getting scared. There is so much uncertainty and lack of information on this cancer that I feel like I am on my own with this disease. So I am hoping to find some reassurance.
At least I know I came to the right place.
Suzie
