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General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

PET scan shows hot spot on head - what's it mean?

by Debbie W on Thu Aug 04, 2016 1:04 pm

What do the results of a PET scan mean if they show a hot spot on the head, and what are the appropriate follow up tests?

Thank you.

Debbie W
Name: Debbie w
Who do you know with myeloma?: mom
When were you/they diagnosed?: june 2014
Age at diagnosis: 71

Re: PET scan shows hot spot on head - what's it mean?

by JPC on Thu Aug 04, 2016 9:16 pm

Hello Debbie.

Sorry you need to be here. You did not really provide enough information for the readers to give you some useful feedback. The short answer would be radiation treatment. But let's start off slow. Is your mother newly diagnosed, and is she seeing a myeloma specialist?

Good luck to you and your mom.

JPC
Name: JPC

Re: PET scan shows hot spot on head - what's it mean?

by Rneb on Thu Aug 11, 2016 7:52 pm

In my case, I had surgery in May 2012, followed by radiation (45 GY) and then treatment (standard induction and stem cell collection), and now I'm on long-term indefinite maintenance (Revlimid).

I am a standard t(11;14) myeloma.

My plasmacytoma was walnut sized, and located on/behind my forehead, where the left frontal sinus would have been, and inferiorally back to the dura. The lesion had eaten thru the bones of the forehead and left orbit. Reconstruction went well. Minimal neurological involvement.

Good luck to your mother. Treatment options really depend on lesion location, size, and amount of destruction due to the lesion, and whether they can obtain adequate margins around the lesion.

You might also read up on solitary plasmacytomas, if your Mom had only the one hot spot and her labs and tests indicate no systemic disease. Good outcomes can derive from solitary plasmacytomas and early diagnosis, and with appropriate interventions.

Rneb


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