[johnwishart]

Paraprotein coming back

by johnwishart on Sat Oct 31, 2015 1:51 pm

Meeting with doc. Paraproteins coming back. Levels have risen from 7 to 10 g/L (0.7 to 1.0 g/dL), so I had another skeleton xray and was told to return in two months for check up.

I'm on Zometa each month, nothing really else. Had chemo once.

Can anyone give any sort of advice or general info?

Thanks,

[JPC]

Re: Paraprotein coming back

by JPC on Sat Oct 31, 2015 4:56 pm

Hi John:

If you are comfortable with responding to the following questions, it might help some of the posters give you a little bit of guidance.

1. What country do you live in?

2. What was your initial therapy?

3. What was your response to the initial therapy.?

4. What was your CRAB symptoms, initially?

5. Do you have and CRAB symptoms right now??

6. Have you been treated by a myeloma specialist??

Very briefly, if you are relapsing for the first time, the medicines potentially available now are better, and you could get a better response to treatment, possibly, than your initial response. It is too early to panic.

Best of luck to you. Regards,

[Multibilly]

Re: Paraprotein coming back

by Multibilly on Sat Oct 31, 2015 5:27 pm

John,

If you have only had one test that indicated a small change from 7 to 10 g/l (0.7 to 1.0 g/dl), I would not start to be concerned until you have another another couple of tests under your belt to show a definitive trend.

Going from 0.7 to 1.0 g/dl is not that big of a swing, in my opinion. Much of the change could simply be due to measuring differences in lab equipment and inherent lab test error, and just normal day-to-day fluctuations in one's M-spike (paraprotein) value.