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Pain relief - options?

by BobbyD on Mon Jan 05, 2015 1:36 pm

Hello all,

This is my first post, so please forgive me if I'm asking questions that have already been answered. Here goes:

My father has multiple myeloma. This week is his 4-year anniversary. I have been supportive of him and my mom throughout the past four years. My dad is a very strong, positive man who rarely complains. In fact, even though I know he is suffering greatly, he very rarely lets anyone outside of my mother see that side of this dreadful disease.

Recently, my mom shared how truly grave this situation has become. His - and her - quality of life are very poor - even though, on the outside, things look better than can be expected. The good news is that his care, meds, nutrition, etc. are keeping the multiple myeloma at bay. The bad news is that he is constantly in a tremendous amount of pain, is forgetful, easily confused and, becoming depressed. He was an athletic, sharp-minded, extremely positive person before myeloma, so his current state is very out-of-character.

I need to do something to help. I have significant resources, thankfully, and can afford to consider nearly any solution available that will help him reduce his suffering. Here's where I need help:

  1. Should we look into palliative care, and should we stay with our current hospital or seek a nationally known hospital, such as Memorial Sloan Kettering? (From my perspective, he receives very little pain management care outside of medications).
     
  2. Are there any at-home treatments that we can get that will help him? For example, I have been reading about Tens machines. Not sure if they will ease his pain, but it could be worth a shot.
     
  3. Are there any other methods that provide pain relief? For example, he has had good results with reflexology.
Any insight, advice or experience you are willing to share with me is greatly appreciated. I want to help, but I don't know how ... so I'm starting here.

BobbyD

Re: Pain relief - options?

by goldmine848 on Mon Jan 05, 2015 4:30 pm

Bobby,

I think that it might help if your father is evaluated by a pain management expert. I know that the large hospital at which I am being treated has a pain management clinic. Perhaps the doctors who are treating him can make an appropriate referral.

goldmine848
Name: Andrew
When were you/they diagnosed?: June 2013
Age at diagnosis: 60

Re: Pain relief - options?

by nancy524 on Mon Jan 05, 2015 6:23 pm

Bobby,

First off, it's wonderful that you are there for them. They need your help.

I agree with Goldmine848, he needs to see a pain management specialist.

I have had myeloma for 7 years, I am in remission now, but I still have severe back pain. I take Vicodin [hydrocodone + acetaminophen / paracetamol] for most of the pain and tolerate it well, but there is still the pain no one understands.

I had my doctor finally refer me to Cleveland Clinic Pain Management, and they have helped greatly with the pain. I get injections every 2 months in my low back and they help.

They can evaluate him and find out what would be best for him.

Keep you all in my prayers, Nancy

nancy524
Name: Nancy Schwartz
Who do you know with myeloma?: me
When were you/they diagnosed?: diagnosed Dec. 2007
Age at diagnosis: 53

Re: Pain relief - options?

by JBarnes on Tue Jan 06, 2015 1:38 am

You indicate that your father is depressed and confused, but didn't say if he was taking any drugs for treatment. Depression and confusion can be common side effects to some treatments.

Is he being honest with his docs about the pain? They can't treat what they don't know. I have found oncologists to be very supportive about treating pain and depression.

Is it possible for you to attend his doc visits? The more ears listening really helps the post visit, at least in my case.

It's really great you are taking a active role in his treatment. Good luck to your dad. Jerry

JBarnes
Name: Jerry Barnes
Who do you know with myeloma?: Self
When were you/they diagnosed?: Aug 17, 2012
Age at diagnosis: 54

Re: Pain relief - options?

by Ian on Tue Jan 06, 2015 2:23 am

Sorry to hear about the problems your father has been having, Bobby.

One thing you have to keep in mind is that there are different solutions for treating different kinds of pain. If your father's pain is due to problems in his back, there may be things like kyphoplasty that could be done to alleviate the pain. If the pain is from neuropathy, there are medications and supplements that can sometimes address that.

There is not just one kind of pain related to having multiple myeloma.

The other thing you should know is that there are many discussions here in the forum that already have taken place, and which have a lot of useful advice about all the different kinds of pain myeloma patients can experience. Go to the "Useful links to existing forum discussions" thread in this forum,

https://myelomabeacon.org/forum/links-existing-forum-discussions-t3780.html

and, near the bottom, you'll find links to all the discussions related to pain, peripheral neuropathy, and other topics that may be of interest to you and your parents.

I wish you and your family the best of luck. Please keep us updated on how your father is doing and what solutions you find for the problems he's been experiencing.

Ian

Re: Pain relief - options?

by BobbyD on Tue Jan 06, 2015 4:55 pm

First of all, many thanks to each of you for your advice, support and guidance. I appreciate it very much.

I think the major problem is that he is not being honest with his doctors about the level of pain he is facing. So I think that is a starting point. It may take me getting involved to give his doctor better insight into his real state of health.

I also appreciate the article link. I realize that this topic has likely been discussed previously, which makes each of your thoughtful replies all the more valuable. Instead of telling me to search for the answer, you helped me. For that, I am grateful.

I will keep you posted as we move forward. Any other suggestions are welcome ...

Many thanks!
Bobby

BobbyD


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