Hello,
I am MGUS patient, live in UK. I use a combination of NHS treatment and private opinion.
Have monitoring for this condition.
Have disc degneration L4 / left hand side, very early morning back pain 10 years. Incidental finding pelvic lesions near sciatic nerve 10 years ago. Lesions stable. Now have prolapse in all 3 compartments. Seeking advice for possible surgery I am in a bad way with my womb right down and haemorrhoidal symptoms.
In fact was told by colorectal surgeon to have a banding operation. However, I have prolapse which appears to be causing all of this. Because of pain and late diagnosis of prolapse, I asked for a bone biopsy, as I was worried I had a cancer that had not been diagnosed.
4 weeks ago had bone marrow biospy iliac crest right hand side in back. Procedure fine little pain but lasted a moment. Now have throbbing of pain in my right thigh. Started with a niggling pain now a throb. Worse when sitting, and bending my right leg, especially when sitting at my lap top.
From info on net looks like nerve pain. Any one out there please with the rare complication. I am hoping to see a pheripheral nerve specialist soon. I am in so much pain.
Sandra
Forums
10 posts
• Page 1 of 1
Re: Throbbing pain 4 weeks after bone marrow biopsy
Hi I too had a BMB and a dull throbbing ache lasted for several months and finally just faded entirely. It never got bad enough to need anything other than a mild pain reliever like Tylenol [acetaminophen / paracetamol] or Aleve [naproxen], but it was indeed there for quite some time.
I trust it will fade with time. Good luck.
Debbie
I trust it will fade with time. Good luck.
Debbie
Re: Throbbing pain 4 weeks after bone marrow biopsy
Unfortunately, bone marrow biopsies can cause both acute and subacute pain issues. Those who do not have acute pain issues are fortunate. Longer term pain issues generally stem from either hitting a nerve or muscles as the biopsy is being carried out. In other cases, the procedure and placement of the patient can affect previous structural issues. As you stated, you have pre-existing low back disc issues (sciatica).
That having been said, 4 weeks seems like a bit long for the pain to be getting worse or not improving, although it can last for months (as the other poster described - nerves can take time to recover). If not done already, ensure that your oncologist, or whoever did that marrow biopsy, knows about your pain. I agree with seeing someone about the nerves, especially with your sciatica.
There are medications and supplements that can help. Over the counter supplements like L-glutamine (1500-2000 mg daily) and alpha lipoic acid are safe supplements that I have seen reduce the degree of the neuropathies (any kind, including from Velcade). Moreover, medication such as gabapentin or Lyrica [pregabalin] are sometimes necessary.
That having been said, 4 weeks seems like a bit long for the pain to be getting worse or not improving, although it can last for months (as the other poster described - nerves can take time to recover). If not done already, ensure that your oncologist, or whoever did that marrow biopsy, knows about your pain. I agree with seeing someone about the nerves, especially with your sciatica.
There are medications and supplements that can help. Over the counter supplements like L-glutamine (1500-2000 mg daily) and alpha lipoic acid are safe supplements that I have seen reduce the degree of the neuropathies (any kind, including from Velcade). Moreover, medication such as gabapentin or Lyrica [pregabalin] are sometimes necessary.
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Dr. Ken Shain - Name: Ken Shain, M.D., Ph.D.
Beacon Medical Advisor
Re: Throbbing pain 4 weeks after bone marrow biopsy
Dr. Shain,
A big thank you for getting back to me.
I have seen two orthopaedic back specialists for advice here in the UK. One doctor inferred that the scan shows far lateral L2/3 disc with compression of the L2 nerve root. He suggested either a nerve root injection L2 root block in the first instance, wait and see, or surgery.
I decided to go for a second opinion.
The second doctor noted a slightly swollen right thigh. He noted degeneration at L1/2 but no evidence of compression. Therefore he cannot find any reason at all as to why I have this pain in my thigh.
He has organised an MRI of my thigh for me, which I had on December 29. I await results.
I do have history of some benign pelvic lesions, so this MRI is sensible. If this proves to be a mass, then I will be directed to the right people. We have a good sarcoma unit here in the UK at Stanmore Orthopaedic Hospital.
I am hoping this is not so, but I have had prolapse problems too for a while and my stomach is just very very sore and tender, especially on the right hand side near my thigh. I fear there may be something going on with distal intussusception and prolapse, which I have had for some time. I have been left dangling on the NHS.
However, this nerve pain started immediately after the bone marrow biopsy. A niggling in the thigh which 2 weeks later became a throbbing; 4 week later more than throbbing.
I've also had a nerve conduction test that came back normal. Here's hoping this is just a collection of nerves initiated from biopsy and no more. I took Lyrica; one tablet came out in red blotches on my arm, swollen wrist. I'm mentally controlling the pain.
A big thank you for making contact. I am somewhat struggling and yearning to get back to my normal active self, especially swimming, which I love.
Happy New Year. I appreciate your getting back to me with kind advice.
Sandra from the UK
A big thank you for getting back to me.
I have seen two orthopaedic back specialists for advice here in the UK. One doctor inferred that the scan shows far lateral L2/3 disc with compression of the L2 nerve root. He suggested either a nerve root injection L2 root block in the first instance, wait and see, or surgery.
I decided to go for a second opinion.
The second doctor noted a slightly swollen right thigh. He noted degeneration at L1/2 but no evidence of compression. Therefore he cannot find any reason at all as to why I have this pain in my thigh.
He has organised an MRI of my thigh for me, which I had on December 29. I await results.
I do have history of some benign pelvic lesions, so this MRI is sensible. If this proves to be a mass, then I will be directed to the right people. We have a good sarcoma unit here in the UK at Stanmore Orthopaedic Hospital.
I am hoping this is not so, but I have had prolapse problems too for a while and my stomach is just very very sore and tender, especially on the right hand side near my thigh. I fear there may be something going on with distal intussusception and prolapse, which I have had for some time. I have been left dangling on the NHS.
However, this nerve pain started immediately after the bone marrow biopsy. A niggling in the thigh which 2 weeks later became a throbbing; 4 week later more than throbbing.
I've also had a nerve conduction test that came back normal. Here's hoping this is just a collection of nerves initiated from biopsy and no more. I took Lyrica; one tablet came out in red blotches on my arm, swollen wrist. I'm mentally controlling the pain.
A big thank you for making contact. I am somewhat struggling and yearning to get back to my normal active self, especially swimming, which I love.
Happy New Year. I appreciate your getting back to me with kind advice.
Sandra from the UK
Re: Throbbing pain 4 weeks after bone marrow biopsy
An update:
I had the bone marrow biopsy 27th October 2014. Right iliac crest. It is now January 12th January, approximately 10 weeks ago. I am still in a bad way. Cannot walk for long periods, hobble around the house, pain sleeping, pain sitting pain standing especially at end of day. I have nerve pain in the whole of my thigh as well as intermittent throbbing. I also have additional pain right groin/hip.
I went to see pheripheral nerve specialist, who initiated nerve conduction tests. Tests normal, however clinician thought that this sounded like meralgia paraesthetica. Tests rather painful because of my status, pain in right thigh, predominately right hand side, with swelling. The last 5 weeks pain in groin too.
Saw back surgeon, had lumbar spine MRI. He thought that there may be some involvement with L2 compression, however report was negative for compression. His opinion was wait, see, injection, surgery.
As report negative, I rang radiologist, asked if they could look at MRI again. Same analysis. No compression.
Decided to seek second back specialist opinion. His opinion, there was no connection between my thigh pain related to my back. No compression. Although a back specialist, he could see swelling on outer right thigh and 29th December I had MRI thigh. This test came back negative for any mass. Also, a trapped nerve is not detected on MRI.
Just to add: I have recently had an ultrasound too. The thigh is swollen, however nothing shows up with ultrasound.
I am now going to see a pain management specialist 15th January, as Lyrica drug disagreed with me, giving me rashes and headaches. I am not used to drugs.
It looks like from my research that a diagnostic injection will be possibly given. Either in the thigh if it is meralgia paraesthetica, or in the back if it is L2 related.
I have no ideas where I go from here.
This nerve pain has been the worst pain I have ever experienced in my life. The pain has somewhat changed over the weeks. It is more diffused. Pain in whole of thigh not just outer thigh. Pain in groin hip came on later last 5 weeks. In fact it was stabbing in the beginning.
Just wondering if I should have ultrasound of stomach? Not sure where I go from here.
It began with a bone marrow biopsy to rule out cancer.
Any suggestions would be most welcome.
Sandra
I had the bone marrow biopsy 27th October 2014. Right iliac crest. It is now January 12th January, approximately 10 weeks ago. I am still in a bad way. Cannot walk for long periods, hobble around the house, pain sleeping, pain sitting pain standing especially at end of day. I have nerve pain in the whole of my thigh as well as intermittent throbbing. I also have additional pain right groin/hip.
I went to see pheripheral nerve specialist, who initiated nerve conduction tests. Tests normal, however clinician thought that this sounded like meralgia paraesthetica. Tests rather painful because of my status, pain in right thigh, predominately right hand side, with swelling. The last 5 weeks pain in groin too.
Saw back surgeon, had lumbar spine MRI. He thought that there may be some involvement with L2 compression, however report was negative for compression. His opinion was wait, see, injection, surgery.
As report negative, I rang radiologist, asked if they could look at MRI again. Same analysis. No compression.
Decided to seek second back specialist opinion. His opinion, there was no connection between my thigh pain related to my back. No compression. Although a back specialist, he could see swelling on outer right thigh and 29th December I had MRI thigh. This test came back negative for any mass. Also, a trapped nerve is not detected on MRI.
Just to add: I have recently had an ultrasound too. The thigh is swollen, however nothing shows up with ultrasound.
I am now going to see a pain management specialist 15th January, as Lyrica drug disagreed with me, giving me rashes and headaches. I am not used to drugs.
It looks like from my research that a diagnostic injection will be possibly given. Either in the thigh if it is meralgia paraesthetica, or in the back if it is L2 related.
I have no ideas where I go from here.
This nerve pain has been the worst pain I have ever experienced in my life. The pain has somewhat changed over the weeks. It is more diffused. Pain in whole of thigh not just outer thigh. Pain in groin hip came on later last 5 weeks. In fact it was stabbing in the beginning.
Just wondering if I should have ultrasound of stomach? Not sure where I go from here.
It began with a bone marrow biopsy to rule out cancer.
Any suggestions would be most welcome.
Sandra
Re: Throbbing pain 4 weeks after bone marrow biopsy
I have had a bone marrow biopsy over 5 years ago for a diagnosis of non Hodgkins lymphoma, just to make sure it did not spread to my bone marrow. I have had nerve issues in my right leg ever since. I have seen neurologists, chiropractor, had acupuncture, you name it, I searched for relief. Now my knee bothers me as well. I do have a herniated disk but was advised it is noncompression. The only help I get is from my chiropractor and massage therapist and handy dandy tennis ball to message site of biposy. I would do the procedure again in order to rule out metastatic cancer, but I would have rather have lost my hair, which of course is temporary, versus this modality that I will have to tolerate the rest of my earthly days.
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Theresa0526
Re: Throbbing pain 4 weeks after bone marrow biopsy
Hello Theresa and Sandra,
I had bilateral bone marrow biopsy in 2013. I have MGUS. Still have nerve damage and pain in left leg and swollen left lower back area. Walk with limp. Left leg muscle weakness. Been to various neurologists, orthopaedic and physio's, etc. So I am glad I have found someone in the same position as myself. Like you, this injury has affected my quality of life permanently.
Best wishes Eileen A
I had bilateral bone marrow biopsy in 2013. I have MGUS. Still have nerve damage and pain in left leg and swollen left lower back area. Walk with limp. Left leg muscle weakness. Been to various neurologists, orthopaedic and physio's, etc. So I am glad I have found someone in the same position as myself. Like you, this injury has affected my quality of life permanently.
Best wishes Eileen A
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Eileen A
Re: Throbbing pain 4 weeks after bone marrow biopsy
Similar pain here from bone marrow biopsy. Site of needle poke has been sore for nearly a year now, making me bend over for relief. I guess they hit a tiny nerve or something. Who knows? I just know it hurts.
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ughmeback
Re: Throbbing pain 4 weeks after bone marrow biopsy
I had a bone marrow aspiration procedure done February 2017 to heal a non-union fracture in my left foot. I wish i never did this procedure; having a broken bone in my foot was way more tolerable pain wise.
Immediately after the bone marrow aspiration, I experienced pain in my hip and could not sleep on that side. The pain has gradually gotten worse. It's 8 months ago since the procedure and I'm still suffering. Pain symptoms I've been experiencing are swelling, burning, electrical / nerve pain, weakness, stiffness, deep ache, sometimes tinging, and spasms. The last two months I have had to take time off from work.
I have seen too many doctors to count here and had numerous of different tests and imaging done. One doctor diagnosed me with complex regional pain syndrome (CRPS), while another doctor who specializes in CRPS stated that I do not have CRPS and diagnosed it as bursitis / tendinitis with nerve irritation. Other doctors have not been able to give me a diagnosis. Some say this reaction is unusual, but I may suspect that it's more common than what the doctors claim.. I have been doing physical therapy since the procedure; weekly massages, anti-inflammatories, oils, epsom salt baths, the list goes on. I am not sure what to do anymore.
Can I expect this to get better over the years? Not sure how I can cope with this pain long term.
Any feedback or advice is greatly appreciated!
Immediately after the bone marrow aspiration, I experienced pain in my hip and could not sleep on that side. The pain has gradually gotten worse. It's 8 months ago since the procedure and I'm still suffering. Pain symptoms I've been experiencing are swelling, burning, electrical / nerve pain, weakness, stiffness, deep ache, sometimes tinging, and spasms. The last two months I have had to take time off from work.
I have seen too many doctors to count here and had numerous of different tests and imaging done. One doctor diagnosed me with complex regional pain syndrome (CRPS), while another doctor who specializes in CRPS stated that I do not have CRPS and diagnosed it as bursitis / tendinitis with nerve irritation. Other doctors have not been able to give me a diagnosis. Some say this reaction is unusual, but I may suspect that it's more common than what the doctors claim.. I have been doing physical therapy since the procedure; weekly massages, anti-inflammatories, oils, epsom salt baths, the list goes on. I am not sure what to do anymore.
Can I expect this to get better over the years? Not sure how I can cope with this pain long term.
Any feedback or advice is greatly appreciated!
Re: Throbbing pain 4 weeks after bone marrow biopsy
I was diagnosed with maralgia parasthetica (numbness or pain in the outer thigh not caused by injury to the thigh) after I had my first son in which I received an epidural for. Afterwards I was having immense pain in my thigh that would throb and even sometimes burn. So if you are having any of those symptoms, then it's a possibility that you could have the same.
Hope it helps. Good luck
Hope it helps. Good luck
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Nikki Jewell
10 posts
• Page 1 of 1