My mom was recently diagnosed with multiple myeloma 2 weeks ago. What prompted all of these tests were small lumps on her knees causing severe pain. We just got her PET/CT results and were surprised to find no evidence of lesions on her knees.
Just wondering if others have experienced intense pain in spots with no bone lesions?
Thank you!
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Re: Pain but no bone lesions?
Hello mrsc,
I'm sorry to hear of the pain your mother has in her knees.
There have been cases similar to your mother's mentioned here in the forum before. See, for example, the discussion in this thread:
https://myelomabeacon.org/forum/bone-pain-but-nothing-on-xrays-t763.html
One possibility that is mentioned in that thread is that, at diagnosis, bones can be "swollen" from the large volume of myeloma cells in them, which might cause pain even without there being lesions.
Did the PET/CT show signs of the disease in your mother's knee bones, even though there were no lesions? If so, perhaps it's the "swelling" that I just mentioned that is causing the pain.
Another possibility is that your mother has lesions in her knees that are not visible with x-rays or a PET/CT, but which might be visible with an MRI. I believe, though, that PET/CT and MRI are just about equal in picking up small lesions, so I don't think this is likely to be the explanation.
The only other things I can think of are that perhaps, in the month before her diagnosis, the disease was making your mother walk in ways that her knees were not accustomed to, causing them them to become irritated or inflamed.
In any case, I hope the pain subsides as her treatment gets underway. Good luck!
I'm sorry to hear of the pain your mother has in her knees.
There have been cases similar to your mother's mentioned here in the forum before. See, for example, the discussion in this thread:
https://myelomabeacon.org/forum/bone-pain-but-nothing-on-xrays-t763.html
One possibility that is mentioned in that thread is that, at diagnosis, bones can be "swollen" from the large volume of myeloma cells in them, which might cause pain even without there being lesions.
Did the PET/CT show signs of the disease in your mother's knee bones, even though there were no lesions? If so, perhaps it's the "swelling" that I just mentioned that is causing the pain.
Another possibility is that your mother has lesions in her knees that are not visible with x-rays or a PET/CT, but which might be visible with an MRI. I believe, though, that PET/CT and MRI are just about equal in picking up small lesions, so I don't think this is likely to be the explanation.
The only other things I can think of are that perhaps, in the month before her diagnosis, the disease was making your mother walk in ways that her knees were not accustomed to, causing them them to become irritated or inflamed.
In any case, I hope the pain subsides as her treatment gets underway. Good luck!
Re: Pain but no bone lesions?
My husband was diagnosed 1 year ago. He has been through Velcade and Revlimid and now Revlimid and Dex. for maintenance. he responded extremely well to his tretments. His m-spikes are now 0.03 but recently he has had back pain. Last month he was sent to his radiologist by his oncologist. The x-rays showed that the 1st rib he broke has not completely healed (#9).
He did 5 radiation treatments which we were told would help strengthen the rib so it would heal. This week the pain is back. His oncologist assured us there are NO lesions per the full body scan. We cannot help but wonder what is going on.
He did 5 radiation treatments which we were told would help strengthen the rib so it would heal. This week the pain is back. His oncologist assured us there are NO lesions per the full body scan. We cannot help but wonder what is going on.
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Joyful Wife
Re: Pain but no bone lesions?
My mother has no lesions in the ribs and yet suffers from rib pain. No idea why.
I guess the myeloma has its way of torturing us.
I guess the myeloma has its way of torturing us.
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Maro - Who do you know with myeloma?: My mom
- When were you/they diagnosed?: March 2014
- Age at diagnosis: 63
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