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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Our Transplant Journey (Sloan Kettering Inpatient)

by dranton on Fri Jun 12, 2015 4:23 pm

David, overall, it sounds like things are going well. The germ obsession will likely continue for some time after she is done in there! I'm out now almost 11 weeks, and I'm still concerned, but I am gradually relaxing.

Keep walking with your IV friend together. My staff let me write on a whiteboard three things I wanted them to do for me everyday, and I put "tell me a joke of the day" on there. It really helped to lighten things a bit and was very helpful.

My best to you and your wife and family.

dranton
Name: Anton Tolman
Who do you know with myeloma?: Self
When were you/they diagnosed?: August, 2014
Age at diagnosis: 51

Re: Our Transplant Journey (Sloan Kettering Inpatient)

by Thaler on Sat Jun 13, 2015 12:45 pm

Day +8

Liz is starting to feel the effects. She has been sleeping most of the day and has little to no appetite. The Ativan is keeping the nausea away. She is experiencing some diarrhea. No fever yet, but her doctor says that when the white blood cells start coming back that she should expect a mild spike in her temperature.

Thaler
Name: David Thaler
Who do you know with myeloma?: Wife
When were you/they diagnosed?: January 12th 2015
Age at diagnosis: 49

Re: Our Transplant Journey (Sloan Kettering Inpatient)

by Thaler on Tue Jun 16, 2015 7:16 pm

Day +11

Liz is feeling good. Her counts are up and she is now able to leave the room for walks. The best news is that we are going home tomorrow.

Thanks to all for your kind words and support.

Thaler
Name: David Thaler
Who do you know with myeloma?: Wife
When were you/they diagnosed?: January 12th 2015
Age at diagnosis: 49

Re: Our Transplant Journey (Sloan Kettering Inpatient)

by Cheryl G on Tue Jun 16, 2015 7:23 pm

Hi David,

I was just about to post to say that I hope Liz is doing well, and then I saw your update from a few minutes ago.

What wonderful news that Liz will be able to go home tomorrow. She must be recovering really well. Is the worst of the diarrhea and nausea over? How long did the worst part last?

I hope you and the rest of the family are holding up well and that the process hasn't created too much stress for all of you. Give Liz our best, and tell her that we all hope she continues to recover quickly and strongly!

Cheryl G

Re: Our Transplant Journey (Sloan Kettering Inpatient)

by Thaler on Wed Jun 17, 2015 2:40 pm

Day +7 was her worst day, and really not that bad at all. Mild diarrhea, some nausea. The rest of her stay was uneventful.

We will be leaving the hospital in 45 minutes. :D

Thaler
Name: David Thaler
Who do you know with myeloma?: Wife
When were you/they diagnosed?: January 12th 2015
Age at diagnosis: 49

Re: Our Transplant Journey (Sloan Kettering Inpatient)

by Cheryl G on Wed Jun 17, 2015 3:00 pm

I'm glad to hear that Liz's experience wasn't so bad. The whole process seems to vary so much from person to person. The most important thing right now is that your wife is coming home, and that she seems to be getting stronger every day.

Cheryl G

Re: Our Transplant Journey (Sloan Kettering Inpatient)

by mikeb on Wed Jun 17, 2015 4:16 pm

Excellent news about going home. Congratulations and best wishes for a smooth recovery from here on.

Mike

mikeb
Name: mikeb
Who do you know with myeloma?: self
When were you/they diagnosed?: 2009 (MGUS at that time)
Age at diagnosis: 55

Re: Our Transplant Journey (Sloan Kettering Inpatient)

by JPC on Thu Jun 18, 2015 8:45 am

Great to hear the good news, David and Liz. Best of luck with the home phase of the recovery. Hope you all enjoy some nice long walks in the nice summer weather (starting slowly, of course).

Best Regards,

JPC
Name: JPC

Re: Our Transplant Journey (Sloan Kettering Inpatient)

by heatherlib on Thu Jun 18, 2015 9:39 pm

Great news, so glad things went so well for her.

heatherlib
Name: heather
Who do you know with myeloma?: self
When were you/they diagnosed?: may 2014
Age at diagnosis: 52

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