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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Oral Bisphosphonates?

by torimooney on Wed Apr 03, 2013 10:50 pm

I am gettiong 4 mg of Zometa each month. My understanding is Zometa is a far more powerful bisphosphate than those given orally or those given by injection for osteoporosis.

torimooney
Name: tori
Who do you know with myeloma?: myself
When were you/they diagnosed?: apr 2012
Age at diagnosis: 64

Re: Oral bisphosphonates?

by heddleandhook on Wed Apr 26, 2017 11:46 am

I've recently seen that oral Zometa is being used in a clinical trial to treat CRPS / RDS - a chronic nerve pain. I can't find any preliminary results or other info about this use, or other issues with oral use.

I'm curious as I have a left arm nerve issue since my stem cell transplant (SCT). It is not exactly diagnosed as CRPS, but referred to as "central sensitization" instead. It is much worse at times, but I've never tracked it.

I am receiving my Zometa infusions q 3 months. I do notice as I'm coming up due in a couple weeks that my nerve pains are getting much worse this week. Now wondering if they will subside somewhat after my infusion.

heddleandhook
Name: heddleandhook
Who do you know with myeloma?: self
When were you/they diagnosed?: Jan 2015
Age at diagnosis: 68

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