It is clear from posts on The Beacon and elsewhere as well as talking to people who have myeloma that some people have long remissions with few treatment lines e.g.induction and stem cell transplant as one treatment line, combination drug treatment lines either following ASCT when no longer in remission or for those not having ASCT (or any transplant).
I am not including allo transplants because few people have these.
I would be interested to hear about people's experiences following relapses and the number of different treatment lines (including details of the treatments) that people have managed without serious loss of quality of life for a long period.
In the present era of growing use of maintenance following ASCT most will be exposed to drugs and some will develop problems, as a number report they have.
We are in an era of a change in thinking in terms of the initial treatment paradigm. Here the issue of relapses and tolerability versus side affects of long term drug treatment with the need for supportive care for the haematological changes that often arise becomes important.
Although most people who post here are relatively young, there are those who have undergone several lines of treatment of their disease, I would like to know of their experiences.
With a disease that is so variable, issues such as stage of presentation and initial iFISH profile may also play a part in the number of treatment lines that come into play to keep the disease in control.
I would be keen to hear from those who have been through three of more lines of treatment about the affects on them of this process and its outcome.
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